Anemia, Fanconi - Resources

SYMPTOMS & TREATMENTS

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Fanconi Anemia Research Fund, Inc.
1801 Willamette St
Suite 200
Eugene, OR 97401
USA
Tel: (541)687-4658
Fax: (541)687-0548
Tel: (800)828-4891
Email: info@fanconi.org
Internet: http://www.fanconi.org/

International Fanconi Anemia Registry
Rockefeller University
c/o Arleen Auerbach
Ph.D.
1230 York Avenue
New York, NY 10021
Tel: (212)327-8000
Fax: (212)327-7974
Email: pubinfo@rockefeller.edu
Internet: http://www.rockefeller.edu/labheads/auerbach/clinresearch.php

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

Canadian Fanconi Anemia Research Fund
PO Box 38157
Toronto
Ontario, Intl M5N 3A9
Canada
Tel: 416-489-6393
Fax: 416-489-6393
Email: admin@fanconicanada.org
Internet: http://www.fanconicanada.org

NIH/National Heart, Lung and Blood Institute ~ Hematology Branch
10 Center Dr, Building 10-CRC
3-5140, MSC-1202
Bethesda, MD 20892-1202
Tel: (301)496-5093
Fax: (301)496-8396
Tel: (800)644-2337
Email: YoungNS@mail.nih.gov
Internet: http://dir.nhlbi.nih.gov/labs/hb/index.asp?

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3143
Fax: (650)462-3144
Tel: (877)735-2929
Email: info@letthemhear.org
Internet: http://www.letthemhear.org

Fanconi Hope
PO Box 905
Southsea
Hampshire, PO1 9JG
UK
Tel: +44 (0) 845 271 2811
Fax: +44 (0) 1794 833433
Email: info@fanconihope.org
Internet: http://www.fanconihope.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 4/6/2009
Copyright 1986, 2989, 1991, 1992, 1993, 1994, 1996, 1997, 1998, 1999, 2006, 2007, 2009National Organization for Rare Disorders, Inc.

1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Article
Feel Shiny and New in 5 Days! Your Detox Grocery List
Healthy Dose
What You Can Learn From the World's Oldest Yoga Teacher (She's 94!)
News Article
CT Scans Reduce Lung Cancer Deaths, Study Confirms
News Article
Your Pooch Could Raise Your Home's Bacteria Count
News Article
Having Both Migraines, Depression May Mean Smaller Brain
News Article
Migraine, Chronic Back Pain Tied to Higher Suicide Risk

See All News

iVillage

Anemia, Fanconi - Resources

SYMPTOMS & TREATMENTS