Brain Tumors, General - Resources

SYMPTOMS & TREATMENTS

American Brain Tumor Association
2720 River Road
Suite 146
Des Plaines, IL 60018
USA
Tel: (847)827-9910
Fax: (847)827-9918
Tel: (800)886-2282
Email: info@abta.org
Internet: http://www.abta.org

American Childhood Cancer Organization
10400 Connecticut Ave
Suite 205
Kensington, MD 20895
Tel: (301)962-3520
Fax: (301)962-3521
Tel: (800)366-2223
Email: staff@acco.org
Internet: http://www.candlelighters.org

Pituitary Network Association
P.O. Box 1958
Thousand Oaks, CA 91358
USA
Tel: (805)499-9973
Fax: (805)480-0633
Email: info@pituitary.org
Internet: http://www.pituitary.org

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
TDD: (866)228-4327
Internet: http://www.cancer.org

Harvard Brain Tissue Resource Center
McLean Hospital
115 Mill Street
Belmont, MA 02178
Tel: (617)855-2400
Fax: (617)855-3199
Tel: (800)272-4622
Email: hbtrc@mclean.harvard.edu
Internet: http://www.brainbank.mclean.org

National Cancer Institute
6116 Executive Blvd
MSC 8322
Room 3036A,
Bethesda, MD 20892-8322
USA
Tel: (301)435-3848
Tel: (800)422-6237
TDD: (800)332-8615
Email: cancergovstaff@mail.nih.gov
Internet: http://www.cancer.gov

Brain Tumour Foundation of Canada
620 Colborne Street
Suite 301
London
Ontario, N6B 3R9
Canada
Tel: (519) 642-7755
Fax: (519) 642-7192
Tel: (800) 265-5106
Email: braintumour@braintumour.ca
Internet: http://www.braintumour.ca

Childhood Cancer Foundation - Candlelighters Canada
21 St. Clair Avenue East, Suite 801
Toronto, Ontario, Intl M4T 1L9
Canada
Tel: (416) 489-6440
Fax: (416) 489-9812
Tel: (800) 363-1062
Email: info@childhoodcancer.ca
Internet: http://www.childhoodcancer.ca

Brain Tumour UK
Tower House
Latimer Park
Chesham, HP5 1TU
United Kingdom
Tel: 0845 4500 386
Email: enquiries@braintumouruk.org.uk
Internet: http://www.braintumouruk.org.uk

Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York, NY 10016
United States
Tel: (212)448-1595
Fax: (212)448-1022
Tel: (866)228-4673
Email: info@cbtf.org
Internet: http://www.cbtf.org

Brain Tumor Foundation for Children, Inc.
6065 Roswell Road Suite 505
Atlanta, GA 30328-4015
USA
Tel: (404)252-4107
Fax: (404)252-4108
Email: info@braintumorkids.org
Internet: http://www.braintumorkids.org

Central Brain Tumor Registry of the United States
244 E. Ogden Avenue
Suite 116
Hinsdale, IL 60521
USA
Tel: (630)655-4786
Fax: (630)655-1756
Email: cbtrus@aol.com
Internet: http://www.cbtrus.org

Cancer Research UK
61 Lincoln's Inn Fields
London, Intl WC2A 3PX
United Kingdom
Tel: 020 7121 6699
Fax: 020 7121 6700
Email: cancerhelpuk@cancer.org.uk
Internet: http://www.cancerhelp.org.uk

Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Tel: (520)625-5495
Fax: (615)526-4921
Internet: http://www.rare-cancer.org

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

Pediatric Brain Tumor Foundation
302 Ridgefield Court
Asheville, NC 28806
Tel: (828)665-6891
Fax: (828)665-6894
Tel: (800)253-6530
Email: pbtfus@pbtfus.org
Internet: http://www.pbtfus.org

PLGA Foundation
98 Random Farms Drive
Chappaqua, NY 10514
Email: contact@fightplga.org
Internet: http://www.fightplga.org/

Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington, VA 22202
Tel: (703)302-1503
Fax: (703)302-1568
Email: info@focr.org
Internet: http://www.focr.org

American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows, IL 60008-3852
Tel: (847)378-0500
Fax: (847)378-0600
Tel: (888)566-2267
Email: info@aans.org
Internet: http://www.NeurosurgeryToday.org and http://www.aans.org

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/patient

Cancer Support Community
919 18th Street N.W.
Suite 54
Washington, DC 20006
Tel: (202)659-9709
Fax: (202)659-9301
Tel: (888)793-9355
Internet: www.cancersupportcommunity.org

Lance Armstrong Foundation
2201 E. Sixth Street
Austin, TX 78702
Tel: (512)236-8820
Fax: (512)236-8482
Tel: (877)236-8820
Email: media@livestrong.org
Internet: http://www.livestrong.org

National Brain Tumor Society
124 Watertown Street, Suite 2D
Watertown, MA 02472
Tel: (617)924-9997
Fax: (617)924-9998
Tel: (800) 770-8287
Email: info@braintumor.org
Internet: http://www.braintumor.org

International Brain Tumour Alliance
PO Box 244
Tadworth
Surrey, KT20 5WQ
UK
Tel: 0044 (0) 1737 813872
Fax: 0044 (0) 1737 812712
Email: chair@theibta.org OR kathy@theibta.org
Internet: http://www.theibta.org

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/27/2008
Copyright  1991, 1992, 1993, 1995, 1996, 1997, 1998, 2004 National Organization for Rare Disorders, Inc.

© 1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

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