Down Syndrome - Other Places To Get Help

SYMPTOMS & TREATMENTS

Organizations

Centers for Disease Control and Prevention (CDC): National Center on Birth Defects and Developmental Disabilities (NCBDDD)
1600 Clifton Road
Atlanta, GA  30333
Phone: 1-800-232-4636 (1-800-CDC-INFO)
TDD: 1-888-232-6348
Email: cdcinfo@cdc.gov
Web Address: www.cdc.gov/ncbddd
 

NCBDDD aims to find the cause of and prevent birth defects and developmental disabilities. This agency works to help people of all ages with disabilities live to the fullest. The Web site has information on many topics, including genetics, autism, ADHD, fetal alcohol spectrum disorders, diabetes and pregnancy, blood disorders, and hearing loss.


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone: (914) 997-4488
Web Address: www.marchofdimes.com
 

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.


National Dissemination Center for Children with Disabilities
1825 Connecticut Avenue NW
Suite 700
Washington, DC  20009
Phone: 1-800-695-0285 (Voice/TTY)
(202) 884-8200 (Voice/TTY)
Fax: (202) 884-8441
Email: nichcy@aed.org
Web Address: www.nichcy.org
 

The National Dissemination Center for Children with Disabilities (NICHCY) is the national information and referral center that provides information on disabilities and disability-related issues for families and professionals. The focus is on children and youth, birth to age 22.


National Down Syndrome Congress (NDSC)
1370 Center Drive
Suite 102
Atlanta, GA  30338
Phone: 1-800-232-NDSC (1-800-232-6372)
(770) 604-9500
Email: info@ndsccenter.org
Web Address: www.ndsccenter.org
 

The National Down Syndrome Congress (NDSC) is a national advocacy organization and a major source of information, support, and empowerment for people with Down syndrome and their families. NDSC's goal is to create a climate in which all people will recognize and embrace the value and dignity of those with Down syndrome. NDSC can provide information on the nearest Down syndrome clinic in your area.


National Down Syndrome Society
666 Broadway, 8th floor
New York, NY  10012
Phone: 1-800-221-4602
Email: info@ndss.org
Web Address: www.ndss.org
 

The National Down Syndrome Society (NDSS) wants to help people with Down syndrome enhance their quality of life, realize their life aspirations, and become valued members of the community. NDSS advocates for research, policies, and education to help people with Down Syndrome. The Web site has information about health care, school and community life, the transition to adulthood, behavior management, family issues, friendships, and more.


By: Healthwise StaffLast Revised: February 10, 2010
Medical Review: Michael J. Sexton, MD - Pediatrics
Siobhan M. Dolan, MD, MPH - Reproductive Genetics
David Smith, MD - Family Medicine

© 1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

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