Eisenmenger Syndrome

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March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: (214)373-6300
Fax: (214)373-0268
Tel: (800)242-8721
Email: Review.personal.info@heart.org
Internet: http://www.americanheart.org

National Transplant Assistance Fund
150 N. Radnor Chester Road
Suite F-120
Radnor, PA 19087
USA
Tel: (610)353-9684
Fax: (610)535-6106
Tel: (800)642-8399
Email: NTAF@transplantfund.org
Internet: http://www.transplantfund.org

National Foundation For Transplants
5350 Poplar Ave
Suite 430
Memphis, TN 38119
USA
Tel: (901)684-1697
Fax: (901)684-1128
Tel: (800)489-3863
Email: info@transplants.org
Internet: http://www.transplants.org

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

American Organ Transplant Association
21175 Tomball Parkway
194
Houston, TX 77070
Tel: (713)344-2402
Fax: (713)344-9422
Internet: http://www.aotaonline.org

Second Wind Lung Transplant Association, Inc.
P.O. Box 1657
Wimberley, TX 78676-1657
USA
Tel: (512)847-9303
Tel: (888)855-9463
Email: barlows9303@gmail.com
Internet: http://www.2ndwind.org

CHASE ~ Children's Heart Association for Support and Education
c/o The Cardiac Clinic, Division of Cardiology
The Hospital For Sick Children
555 University Avenue
Toronto
Ontario, M5G 1X8
Canada
Tel: 4164102427
Email: kidheart@angelfire.com
Internet: http://www.angelfire.com/on/chase/

Kids With Heart ~ National Association for Children's Heart Disorders, Inc.
P.O Box 12504
Green Bay, WI 54307-2504
Tel: (920)498-0058
Fax: (920)498-0058
Tel: (800)538-5390
Email: michelle@kidswithheart.org
Internet: http://www.kidswithheart.org

Little Hearts, Inc.
P.O. Box 171
110 Court Street, Suite 3A
Cromwell, CT 06416
USA
Tel: (860)635-0006
Fax: (860)635-0006
Tel: (866)435-4673
Email: info@littlehearts.org
Internet: http://www.littlehearts.org

Congenital Heart Information Network (C.H.I.N.)
101 N Washington Ave, Suite 1A
Margate City, NJ 08402-1195
Tel: (609)822-1572
Fax: (609)822-1574
Email: mb@tchin.org
Internet: http://www.tchin.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/5/2008
Copyright  1988, 1989, 2001, 2002, 2003, 2006 National Organization for Rare Disorders, Inc.

© 1995-2011 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

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