Hey Shelly----

iVillage Member
Registered: 02-12-2002
Hey Shelly----
10
Thu, 11-29-2012 - 7:02am

How is Waylon making out at school?  Any luck getting him to drink the Ensure or whatever they suggested in Pitt?

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iVillage Member
Registered: 04-01-2002
Sat, 12-01-2012 - 9:16am

Another question, Shelly-

Since his transplant does digestion hurt Waylon?   How about bathroom stuff?   Does that hurt after he eats?   I was wondering if maybe it does put him in pain so eating= hurt so he avoids it.   I am medically clueless so I have no idea.

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iVillage Member
Registered: 02-12-2002
Sat, 12-01-2012 - 8:13am

How are things going Shelly?  Any luck getting him to eat anything?  I would think he would be getting hungry by now.

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iVillage Member
Registered: 10-10-2003
Fri, 11-30-2012 - 9:36pm

And I agree with the others too- You MUST call Pitt and get answers..  they are the specialist and I would keep calling till I found 'an' answer. 

He must eat and if he is fine with you taking all the 'gadgets' away then do it. And stand firm,

Good Luck Shelly and do NOT wait till Janruary please..

Now onto Daisy and the gal in Oregon.. You got me wondering .. Michigan being a medical marijuana state how old do you have to be to get the stuff? Makes me wonder.

And ya know we had a kid at dc once that took a pill to make her eat... Keep researching Shelly!

iVillage Member
Registered: 10-31-1999
Fri, 11-30-2012 - 9:55am

Shelly, I totally, TOTALLY, agree with Sandy and Tracy!  You have gone way beyond what any mom should have to endure.  I think we all know how hard it is to try to MAKE your child do something he/she doesn't want to do at any time... but to try to MAKE them do something that is so vital (eat) must be even more frustrating.  You are right... you do NOT want to watch him whither away and die... I am sure he really doesn't want to either.

I cannot help but think maybe he is tired and probably pretty depressed at having all these health issues.  Depression sometimes causes lack of appetite.  While I think the counseling is an awesome idea... I think maybe he might need a little medication.  I know the thought of putting an 8 year old on mood-elevators sounds horrible, but Waylon's situation seems like is getting worse.  Not that I am a professional by any means, but I bet he probably has what they call "situational depression" which is only temporary and does go away. 

Heck, any ADULT (who is likely to be way more mature and logical than an 8 year old) having to go through what that poor little guy is going through would need help... and probably lots of it. 

I hope you don't think I am the type of person who pushes medication on kids at the drop of a hat to take care of problems... but like I said, he has been through SO much....

I do not know if I agree with this situation either... but I heard on the news the other day that a mom in Oregon is giving her 7 year old daughter marijuana oil in pills and food.  She said it helps her daughter eat, sleep and it combats the bad effects of chemotherapy she is getting for leukemia.  The little girl's father (who is divorced from her mother) noticed the girl acting all spaced out in August and took her to a private lab, where technicians found THC levels of an adult daily marijuana user.  He notified Child Protective Services, the police and the girl's oncologist.

An article on Foxnews.com said the mom believes marijuana heals, and said it cured her stepfather's skin cancer.  She is also medical marijuana patient, and her boyfriend is a grower. The mom is so convinced of it's safety that she consumed it during pregnancy and while breastfeeding her second child.  When the girl's symptoms are especially bad, they will feed her cannabis-infused food. That poor girl has had up to 1.2 grams of cannabis oil in 24 hours, which the article said is the rough equivalent of smoking 10 joints.  The mom did admit that her daughter's first oncologist called the marijuana use "inappropriate." 

Like I said, I am not sure how I feel about the girl getting the cannibis oil but if it's a question of her taking it and eating to stay alive, I think I'd probably have to do it.

Sorry to get kind of off-topic but Waylon's anorexia (the symptom, not the disease) made me think of this little girl's situation. 

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iVillage Member
Registered: 02-12-2002
Thu, 11-29-2012 - 3:19pm

Shelly I think your Dad's bright idea is stupid and I know you do as well.

I would be on the phone with the doctors at Pitt and ask about the clinic they talked about.  I wouldn't wait.  You just stand tuff on this one because like you said you are NOT going to let him just wittle away and die.  The child that gave Waylon a 2nd chance on life should not have had his organs given up for that to happen either.  

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iVillage Member
Registered: 07-03-2008
Thu, 11-29-2012 - 12:43pm

He would be perfectly fine with me taking everything away, Him coming home and going to bed and that be that. I can not sit on him and force food down him.

Yes, he needs some counseling, and he is signed up to see the school therapist next Monday. If she can't help or he won't talk, IDK what next.

If, when we go back on January 3, I'm sure that the eating clinic will come into play. 

I am just at a loss. My dad's big bright idea? Ask P to move back in and maybe he can influance him? WTH???

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iVillage Member
Registered: 04-01-2002
Thu, 11-29-2012 - 12:13pm

No Mother of the Year award coming?   Why not?  YOU are the adult and as such YOUmake the rules.   Oh yes, you are going to eat.   No iPad, no video games, no nothing until it's gone.  He's playing you.  But I'm sure you know that.  Someone telling him how it's going to be is exactly what he needs.

What about that eating disorder or nutrition clinic they wanted you to take him to a few years ago?   That still an option?  I'd sure put mine there before I'd watch him wither away and die.  

Stick to your, guns, Shelly.   Tuff love is just what he needs.  You're doing fine.

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iVillage Member
Registered: 02-12-2002
Thu, 11-29-2012 - 10:27am

Tuff love is what he needs Shelly that and maybe some counseling?

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iVillage Member
Registered: 07-03-2008
Thu, 11-29-2012 - 10:12am
And as for his stubborness, he takes that after his dad!!!!!!! And I hope some "tough love" sinks in!!!!

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iVillage Member
Registered: 07-03-2008
Thu, 11-29-2012 - 10:09am

We got to schol yesterday and he said he didn't want to go, that he wanted to be home schooled. I said fine, let's go talk to Mrs. Wade (principal). So I dropped Jeffrey off at the cafetereia and then we went to her office. Her, Waylon's home schooling teacher Mr. Thomas, his teracher this year Mrs. Freed, the secretary and school nurse (who is only there on Wednesdays) all meet in the office and we talked to him and he decided to give it a try. 

I called and checked on him after lunch time, and the secretary said he was ok, Just finished his noon meds. Said he didn't eat much, but I wasn't expecting much from him since the tube was new etc. The boys got home and I made dinner, exactally what Waylon had asked for. He didn't have one bite.  And he had promised me that he would at least TRY an ensure. But he didn't. So I had a down and dirty talk with him.

I told him if you don't try to help yourself, then you are going to have to keep the tube and be on 24 hour feeds, and eventually you will wither away and die, and I'm not ready to let you go. I love you too much. Then I busted loose bawling, so I went to my bedroom and had a good cry. He never said a word.

Got up this morning, and he said he wasn't going to school. I said yes you are. You aren't going to help yourself get better, then I'mnot going to baby you. - I'm sure there is NO mom of the year award coming from him! LOL

Here are the boys last night playing on the iPad:

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