CFS medication?

Avatar for sunset5000
Community Leader
Registered: 10-10-2007
CFS medication?
4
Mon, 08-27-2012 - 4:07am

I am new to learning about CFS.  Today, I was reading about the medication Dexedrine being used for CFS.  Has anyone taken this medication or heard of it? 

Thanks

 

Community Leader
Registered: 10-22-2001
Thu, 10-04-2012 - 8:47pm

RA (Rheumatoid Arthritis) not only causes pain but one of the symptoms is fatigue.

Nightangel
iVillage Member
Registered: 06-06-2000
Wed, 08-29-2012 - 12:30am

I know you said you've been to several doctors, and I hope they ran all the tests that would normally be run, plus some for auto-immune diseases, like Lupus, arthritis, etc.  Have you been to a rheumatologist?  I would think narcalepsy would be something you or those close to you would notice!  Like, if you fell asleep all the time or looked awake but were not responsive, it would be obvious to anyone around you for a while.  If no one's noticed anything like that, then you can probably rule that out, lol.  It's very frustrating to get a diagnosis for CFS or Fibromyalgia, since there's no tests you can really run and have them say, hey, that's it!  Sadly, most docs don't know what to do to help with problems like this.  If your PCP has referred you to a neurologist, you will likely have a bit of a wait to see him/her, since they are busy docs, so my advice would be to start writing down how you feel everyday, like if you are tired, how much sleep you got, what you ate, any pain issues, etc.  You can spot patterns in your health that way and it's a good tool for your doctors, because they get an insight into your life.  

Avatar for sunset5000
Community Leader
Registered: 10-10-2007
Tue, 08-28-2012 - 7:07pm

Thank you for the warm welcome to the board and for taking the time to help.  I am very appreciative.  I did go for a regular check up with my family PCP yesterday and mentioned the drug Dexedrine to him.  He is not very strict, but he was about that drug and said he won't prescribe it.  I had just asked him, as I did not know.  So, then he asked me, "I know you have been to several types of doctors in the past year to determine why your extremely sleepy, but have you went to a neurologist?"  I looked down and said I had not.  That is probably the only route I had not tried.  I had a sleep study months ago and they said I don't have sleep apnea or narcolepsy, but sorry to say, that dr. did not seem to have any ideas of what I could do.  My PCP mentioned it sounds so much like narcolepsy and if I choose to go to a neurologist, they would know foresure from tests.

My vitiman D and vitiman B6 and B12 were a tiny bit low, so have been taking those vitimans.  It helps some, but I don't think that is what is the primary cause of the extremeness fatigue.

Oh caffeeine, I confess to 2 Mountain Dews a day, at most.  Bad, bad, I know, grin.

Thanks again for your response and I sapose I will be making yet another dr. appointment to see a neurollogist, sigh.

 

iVillage Member
Registered: 06-06-2000
Tue, 08-28-2012 - 6:44pm
Welcome to the board! I don't think I've seen anyone on the board using it for increasing energy, but it's used to treat ADHD, and in an adult, it would make you pretty jittery. A lot of people abuse drugs like this because of that, and the fact that they suppress your appetite, making it a favorite in Hollywood for easy weight loss and control. I'm not sure if it would be of good value for CFS or not, but I do know that other drugs, like Provigil, which is used for Narcolepsy and shift workers who have a hard time staying alert and awake, have been used for CFS off label. Personally, I use coffee, tea, and diet coke for energy, although at this point, caffeine seems to have little to no effect on me at all, unless I don't drink any, and then I get a monster headache and feel like I'm going to die, thank you caffeine addiction! I would discuss any medication you might end up taking with your doctor AND the pharmacist (pharms have a lot more knowledge about the drugs than docs tend to have by nature of the job), so you can make an informed decision about taking it. A lot of the medications for CFS/FM have very nasty side effects that may outweigh any benefits you get from them, like weight gain, depression, etc. The most important thing you can do for your health is to be informed, proactive, and honest with your doctor. Equally important are diet, exercise, sleep, and stress management, which seems like a bunch of hard work, and at times, when the exhaustion is really bad, more than you could possibly do, but is vital to your health. Even if all you can manage is to walk around the block, it's worth doing, since in the long run, you will have less pain and fatigue. A lot of people have found eliminating certain things from their diet, like wheat and dairy, have also helped. I am allergic to both, so I don't have a choice, lol. You can try eliminating one thing at a time, say going gluten free, for 4 weeks and see if you notice any improvement. If not, reintroduce it and eliminate something else, like dairy, soy, etc. It's a pain but if it helps, it's worth it. Have you had your vitamin D levels checked? Low D can make you feel pretty yucky. If you have any questions, feel free to stop by any time! There are plenty of people around here who've tried just about everything and can let you know what's worked for them.