Its been a long year...

iVillage Member
Registered: 02-09-2012
Its been a long year...
4
Thu, 02-09-2012 - 11:19am

iVillage Member
Registered: 01-23-2012
Wed, 02-15-2012 - 1:44am
This question may seem way off base because of your age BUT have you had your hormones checked? The symptoms you mention here sound very familiar and an awful lot like early onset peri-menopause. I was 45 when I went through the same symptoms... A large majority of your other symptoms are very similar to what I have been experiencing off and on for more than 30 years... It's funny that when I was diagnosed way back then I was told that FM is not progressive...you couldn't tell by me. I wish you much luck in finding that 'just right mixture' of meds that will make life liveable again for you. {{Hugs}} Agi
iVillage Member
Registered: 06-06-2000
Mon, 02-13-2012 - 10:15pm
It really does sound like lupus. My sister has lupus, but never had "definative" lab results. Her rheumy says she knows lupus when she sees it, and she certainly has a lot of the problems that go along with it. Don't waste your energy feeling guilty! You have a real disease with real symptoms that's already made you very sick. Stay as active as possible, eat a healthy diet, and try to sleep "well.". Lupus or fibro, these steps will help you feel a lot better overall. When you have bad days, use them to do silly stuff, like watch lifetime movies. Hope you start feeling better.
iVillage Member
Registered: 02-09-2012
Mon, 02-13-2012 - 2:30pm
thanks for replying ... no breast implants ... nothing like that ever .

Last night i went to a funeral for a friend and i was standing for about an hour. when i sat down for the first time it felt like my bones were bruised and i had to stand back up . i had gotten so stiff and sore . This morning i couldnt even go to the funeral i was so exhausted . just couldnt wake up.


I have been tested for everything from sarcoid to SLE to sjrogrens .. thyroid... everything is negative. The only thing that is positive is the lupus anticoagulant indicative of APS , which caused the clots. my symptoms go right along with SLE , as well as many other autoimmune diseases, but fibro also mimics so many things . There are some very specific symptoms of fibro that i have read that are absolutley true of me and are not found in other diseases. So i do trust the fibro dx .

whats peculiar though is that on my last CT scan the report said i had the granulomas and all the lymphnodes in my lungs were calcified, it said " indicitive of prior lung disease.

ive never had any lung disease... another dr told me that was not from a lung disease but from " whatever autoimmune disease you have"

there again , the autoimmune tests have been consistently negative.

Some of my symptoms are getting worse though .. VERY frequent urination , and i havent changed fluid intake , i even have to get up a few times a night which i have never done. Breaking out into cold sweats , going from chills to hot flashes in a matter of seconds , i have to take benadryl to rest at night . i stumble , drop things , lose my keys , cant remember what i did five minutes ago . its very frustrating .

and i cannot see at night , cant even drive anymore at night , last time i almost hit a truck and ran over a curb was it for me . :)

I went to the eye dr and he said he couldnt believe what he was seeing , he said i had astigmatism and i was using 4 units of power just to be able to focus my eyes.

and your comment " felt like i was dying" been there .... when all this started i was afraid to go to the dr i swore i was dying of cancer , the way i was feeling just made no sense at all to me.

And in the midst of all this i am left feeling guilty , it is so difficult to explain to my boyfriend and kids why i cant do certain things . i feel im not doing my part , so i will push myself and do everything and then some .. but i do end up paying for it the next day .

and ive had to quit my job ... we will be ok financially , but i have two preteen girls who need things and they are starting to go places with their friends and "need" trendy clothes :) and it is going to be a struggle . I am used to having my own money , and lots of it ... and now ive applied for disability .. well SSI anyway ... but i seriously doubt i will get any help there.,
iVillage Member
Registered: 06-06-2000
Sat, 02-11-2012 - 3:19am

I've had healthy young, 30's, women as patients with a spontaneous PE before.