New Here

iVillage Member
Registered: 01-30-2013
New Here
2
Wed, 01-30-2013 - 3:30am

My name is Stephanie. I'm 25 yrs old. I was diagnosed with fibromyalgia in late 2008, but had it at least 2 years before that. I tried going to cosmetelogy school because that's what I've always wanted to do, but just had to drop out because it was just too much and I was falling asleep while driving to and from. (it's 45 min there and 45 min back). Now, I'm just home all day and about to file for disability.

       ~~~ Stephanie

iVillage Member
Registered: 06-06-2000
Wed, 02-06-2013 - 4:36pm

What kinds of things have you tried? There are a lot of things you can do to help overcome the fatigue, like getting enough sleep, a healthy diet, medications, massage, exercise, etc. One option is Provigil, a drug for narcoleptics and shift workers, that helps you stay alert. Another option is Tramadol, which I take for pain. One of the good side effects is that it makes me more awake and alert, which is why I never take it close to bedtime. Something else that may help is a muscle relaxer taken at bedtime to help you sleep better; I take flexeril and it works fairly well most days. Also, is there a chance you may be depressed as well? When you are exhausted and in pain all the time, it's pretty easy to sink into a depression, which only makes you MORE fatigued. What works for me is to take the Tramadol and Tylenol when I wake up and then half way through my day, eat a fairly healthy diet (which I sadly haven't been doing lately and I'm paying for it), exercise most days, either doing yoga or running on the elliptical, taking the flexeril to help me sleep, and taking care of myself by doing little things to make me feel better, like keeping my hair and toenails looking good. Bubble baths, ONE glass of wine, a good book or Lifetime Movie, plus going to see my chiropractor/Chinese Medicine doctor every 2 weeks are essential to my health, too. It may take a while to find the right treatment plan for YOU, but once you do, you'll feel a lot better. I know it seems like you will never feel better, but you will. I have my doubts about you being able to get on disability for FM, to be honest, because there are a lot of things you can still do despite the fatigue and pain. I'm NOT trying to say you aren't too sick to work, just that it's hard to get onto disability, and it can take years. If you don't already have a good doctor who's willing to work with you, get one, and start working on finding the right treatment plan. It took me several years of trial and error, and there were a lot of times I just wanted to give up, but it's possible. I work 3 - 4 12-hour night shifts a week as an ICU nurse, which is a very physical job, with turning and bathing, etc, people on life support, and they're hardly ever thin, especially here, in the fattest area of the US.

iVillage Member
Registered: 06-06-2000
Wed, 02-06-2013 - 4:58pm

                   http://www.ivillage.com/put-together-your-fibromyalgia-treatment-plan/4-a-121387

http://www.fmnetnews.com/

Here are a couple of links to help you get started working on a treatment plan.  Like I said, it can take a while to find what works best for YOU, but it's worth the effort, trust me.  I feel SO much better when I stay on track, and I'm able to work and have a life, even if I do have to get more rest than other people and work around my body.  Plus, when I am having a flare up, I use that time to catch up on reading and watching TV, snuggling with my son in bed and watching movies, eating cookies for dinner, and basically anything else that makes it suck less.  I don't really reccommend cookies for dinner more than once or twice a year, lol!