Remembering the beginning of FMS/CFS

iVillage Member
Registered: 04-27-2006
Remembering the beginning of FMS/CFS
Fri, 04-27-2012 - 11:50am

I remember when my symptoms first began. I was still able to clean (srubbing floors), do my walking 2-3 miles, and go to the mall, visit friends and then as time went on all that slowed up. It was hard when it all slowed up, but now it has all stopped. I cannot clean much, except laundry and some vacuuming, I cannot walk far without paying a huge price, I had to stop going to the mall unless I parked close to the store I wanted to go to. I have now moved to a place where there is no medical care for my FMS/CFS unless I travel at least an hour and a half away or more. If I go closer to a joining state, my insurance does not cover my medical bills. I have had no treatment since Feb 3, 2012 and although that does not seem that long, it does to me and my body. I hurt so bad. I got a primary care doctor, but she can only help me a little. She sent me to a doctor that was 1 and 1/2 hours away and he wanted me to come 2 times a week. He wanted me to take a class and come a seperate time for my meds. There was no way I could afford the gasoline to do that. I do not have an extra $70 a week laying around, not to mention, I did not have the transportation on a regular basis to go that often, so now

     ~ Tina ~

iVillage Member
Registered: 07-04-2007
Sun, 04-29-2012 - 11:36am

Sorry to hear that you are going through so much, without support from loved ones.

Not sure why your PC doctor cannot write prescriptions for you--perhaps just chooses not to do it. My prescriptions are done my PCP and are ones that I've been taking since the onset of being dx'd with fibro--although my PCP did send me to a rheumatologist and a neurologist and all ruled out lots of other stuff before the dx of fibro was made. I was already taking tramadol (OA in the spine)--the neurologist added the tizanidine and sertraline--however, for simplicity, I asked my PCP to take over all prescriptions and she obliged. I don't take any of the new drugs specifically for fibro but take ones that were commonly used before the new ones came out--and fortunately have helped me from the beginning.

I take:

TRAMADOL HCL (generic for Utram) 50 mg -- 1 tablet 3xdaily as needed for pain

TIZANIDINE HCL (generic for Zanaflex) 4 mg -- 1 tablet 2xdaily as needed for muscle relaxant/and sleep

The third med I was prescribed, but no longer take, is:

SERTRALINE HCL (generic for Zoloft) 50 mg -- 1 tablet daily, an antidepressant that also helped to calm the nerve endings

Here is a website that might help, plus there are letters that you can print out that you can take to your doctor that might help explain more about what you are going through.

http://homepages.sover.net/~devstar/

It is good that your PCP tried to get help through another doctor, but if you can't get to that doctor it doesn't get the help you need. Your PCP can help you, but many are unaware or unwillilng to help chronic pain conditions. I hope you can get the much needed help you need--it isn't easy trying to get through this by yourself.

Along with the fibro I also have Chronic Myofascial Pain--a lot of time goes hand-in-hand with fibro but seldom treated or addressed. You can have one without the other. Doctors have to do more than just give pain pills to mask over the pain--they need to get to the bottom of what is the cause of the pain and why your body is staying in "stress mode." Taking care of body, mind and soul is very important and should be part of the entire treatment plan. Hang in there, not easy I know!

Michelle/mica_ga


Kindness is more important than wisdom,