Summer Flare up

iVillage Member
Registered: 06-06-2000
Summer Flare up
2
Sun, 06-30-2013 - 3:08am

I have been having a flare up just in time for summer, no doubt brought on by stress.  I have had to let my "baby" boy, who's almost 13, go spend the summer with my ex-husband for the first time, and it's been really hard.  He's my buddy, always has been, even more now that it's just the two of us.  It's a little lonely here, but I've been using the time, so far, to exercise, clean the house, spend more time with friends and my other son, who is all grown up and lives away from home, and try to make plans for the next little bit of my life.  Unfortunately, having a flare is not on my to do list!  I woke up several days last week with my hands and feet swollen, red, and painful, and feeling super tired, foggy, and blah.  I managed to get myself moving and went walking, swimming, and did some yoga, though, which helped, but it took quite a while before I could convince my body to move at all.  My friend, who also has FM, is trying to lose weight and was complaining about not feeling like exercising, so I told her lets go walk!  The next day, we sat in the hot tub where she lives for a while until we could move and swam and did water aerobics for about 30 minutes.  Peer pressure is sometimes a great thing, and so is a hot tub and a glass of wine!

Right now, I am spending day 2 in bed following my long day at the hematologist getting gamma globulin through my veins so I can fight off annoying sinus infections for another 6-7 weeks.  While that stuff is like a miracle, in that I no longer have to take antibiotics daily to survive and it's really helped my FM symptoms, it makes me sick as heck for a few days.  This time, I got the nausea and migraine before my IV was even over. The headache and nausea are now mostly gone, but the fatigue and dizziness are still hanging on.  I hope to be feeling well enough tomorrow to make it to a movie and dinner with my girlfriend, and hopefully get some of this house cleaned, too.  I was halfway through the kitchen, taking everything off the shelves, cleaning, reorganizing, etc, so I've got stuff everywhere!  Anyone in TX with OCD and some free time is welcome to come take over!  Nevermind my allergies to dust, I really hate cleaning.  I hate cluttered disaster areas more, so I'd better get to feeling better fast so I can have the entire house cleaned and organized from top to bottom before my little one boy tornado returns to throw his socks on the floor.  

iVillage Member
Registered: 02-18-2013
Sun, 06-30-2013 - 10:30am

Can you tell me more about how you knew it was fibromyalgia and how old you were when it was diagnosed? Thanks

iVillage Member
Registered: 06-06-2000
Sat, 07-13-2013 - 12:37am

Sorry for the delay!  Between my internet not wanting to work and feeling yucky, it's taken me too long to get back on here.  

I was diagnosed when I was 21, back when FM was a catch all for women with undiagnosed problems, so I really didn't want to belive I had it.   As for accepting that I did have it?  I kept looking into all the things it could be, and fibro was the only one that made sense, and I'd been diagnosed with it already 2-3 times at that point.  I didn't have much of a choice, lol.  I was just really glad that by that time, it was more accepted as a real problem vs a fake disease people have as an excuse to take pain killers and not work.  Since then, I've been able to work with my docs to make a treatment plan that works for me.  It took a while, though.  It's definitly worth fighting for and working on, though.  My life isn't perfect, and like now, I still have flare ups, but I can live fairly normally and do pretty much what I want, with a few tweeks to make it work for me.