Hello to everyone from the Epilepsy and Seizures board

Community Leader
Registered: 04-07-2008
Hello to everyone from the Epilepsy and Seizures board
7
Fri, 01-27-2012 - 10:50am

Hi Everyone and welcome to our new hang-out. I'll check in each week here and I hope you will too. :-)

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

Avatar for balletkat
iVillage Member
Registered: 10-13-2005
What happened to the old board?

Mary

Community Leader
Registered: 04-07-2008

Hi Mary,

The old board was closed. I think you and I were the only posters left. I hang out on lots of boards around here so I'll be sure to drop in here too look for updates.

How are you feeling?

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

Avatar for balletkat
iVillage Member
Registered: 10-13-2005

Thanks for letting me know what happened to the old board.

Mary

iVillage Member
Registered: 06-07-2009
iVillage Member
Registered: 06-07-2009
karla1842 wrote:

Hi Everyone and welcome to our new hang-out. I'll check in each week here and I hope you will too. :-)

HI Karla,

I have a very important question.Plz read!I had the DBS implanted in november.Recently I had a stay for 2 months in hospital.There I developped a terrible thirst.I need to drink all the time, but it doesn`t help.I remain thirsty.It`s horrible.I don`t have any kind of diabetes and they didn`t find the cause.

Additionally, I got very

Community Leader
Registered: 04-07-2008

Hi Kay,

Have you consulted with your neuro on the jerking? Is it entirely new? Have they done an EEG to see if it is a seizure? When my daughter's limbs started jerking they told us it was another type seizure (simple partial). She also has excessive thirst but hers is a

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

iVillage Member
Registered: 06-07-2009

Hello KArla,

the jerking and the thirst started in hospital during the monitoring EEG`s.

What medication is your daughter on?

Thanks a lot!

Kay