Are you employed?

Avatar for cmkarla
Registered: 01-03-2001
Are you employed?
Tue, 08-21-2012 - 9:04am

How do you manage at work with symptoms, side effects of drugs, etc.? How supportive is your boss?


iVillage Member
Registered: 03-09-2004
Tue, 08-21-2012 - 9:19am

Unless you consider being a mom and caretaker as a job (underpaid at that :smileyhappy:  ), then, no I am not employed.  But if I ever got a job in the line that i have a degree in, the medical field, I do believe and would hope I would have a lot of support from my boss.

Powered by
Mom to furangel, Chelse
Avatar for martycee2
iVillage Member
Registered: 04-22-2003
Tue, 08-21-2012 - 3:38pm

Great question Karla! Hopefully a few 'lurkers' will come out and respond to this as well. We really need something to stimulate a little more usage on this board.

By the way, Chris, I have no doubts that you work harder at what you do than anyone I've ever worked with anywhere! Yup, you are definitely "underpaid," however, I'd bet you get more gratification through your daughter than any paycheck could ever generate!

As for me, I still maintain (sorta...) a part time job doing maintenance at a care facility for individuals with severe brain injuries. We have 10 apartments in the main building and 8 apartments in a separate building where there are presently three clients living.  The other apartments in that building are rented to people with no disabilities however I still get to make repairs when needed in any of the units. My boss is very aware of my limitations and works with me to accommodate any problems I might be dealing with. I have no set start/finish times and work only when I want to. I try to get in at least 3 to 4 hours a day if I can. Some days an hour is almost too much but everyone understands so there is never a problem.

When I was diagnosed nearly 20 years ago I was working full time as a customer service supervisor. I was having problems with gait and found myself stumbling when walking around the office. I also had a lot of rigidity primarily on my left side. My boss at that time couldn't believe I had Parkinson's - neither could I for that matter. She was very supportive and even though it's been 15 or so years since I left that position, we still keep in touch.

I've had four different jobs, all customer service positions except for a year of so when I worked at a Home Depot store. I never hid my Parkinson's and every employer I worked for was very supportive.

My biggest regret is that I didn't take disability sooner instead of waiting until my PD became a real problem for me. I would have been much better off and surely would have felt better about leaving the work force.

As it was, I waited until I couldn't keep up and felt I was being over shadowed by everyone around me. I was struggling with self confidence and it really took me down.  I still struggle with that but it's all pretty much worked out okay. Can't change the past!

iVillage Member
Registered: 03-09-2004
Wed, 08-22-2012 - 8:33am

Hey Marty, thank you so much!  And yes, Jenna shows me each day just how rewarding my job can be!  :smileyhappy:

Powered by
Mom to furangel, Chelse
Avatar for lsb210
iVillage Member
Registered: 07-18-2000
Sat, 08-25-2012 - 8:11am
Marty this is a GREAT response. Very insightful.

Chris, you have the most rewarding job of all.

Ruben, you make me want to take up fishing.
Avatar for martycee2
iVillage Member
Registered: 04-22-2003
Wed, 08-29-2012 - 3:54pm
FennellKevin wrote:


My experience is that it is better to be honest with your employer and ask for help rather than try to hide your condition.

I agree Kevin. It has always been my experience that being honest about my PD was the best way to go! Not once did it ever hurt my relationship with an employer.



Community Leader
Registered: 10-22-2001
Mon, 01-21-2013 - 12:14am

Really good question.

It is really difficult to work sometimes but harder still to admit you can't do it, anymore...:(...

Loved the responses and the honesty.

Too many times we place value on what someone does rather than who they are...;)...