My granddaugher is here...

Community Leader
Registered: 04-07-2008
My granddaugher is here...
20
Mon, 01-03-2011 - 12:06pm

My first grandchild, London, was born 1/1/11 weighing in at 1 lb 11 oz. She was 14 weeks premature and is now in a specialized NICU for micro preemies. She is not doing well so we could use all the prayer you can give us. We don't know what happened to cause her early birth but she is here and we're hoping for the best.

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

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Avatar for coldfingers
Community Leader
Registered: 04-30-2000
Wed, 01-26-2011 - 4:10pm

Dee, you have EVERY reason to brag!!!

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Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Wed, 01-26-2011 - 3:39pm
Thanks! We have been a close family in spite of my son's teen issues but it was Noah's birth that brought us all even closer. I was surprised to see how my 20 & 24 yr old sons stopped their lives to support their sister & nephew. It was amazing. They are both extremely close to Noah & have done everything for him including changing those messy diapers. I will stop bragging now. :-)

Dee
iVillage Member
Registered: 10-26-2010
Tue, 01-25-2011 - 5:10pm

sending good thoughts out to the baby ;

Merry Christmas
Avatar for coldfingers
Community Leader
Registered: 04-30-2000
Tue, 01-25-2011 - 4:09pm

Oh, Dee.................

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Community Leader
Registered: 04-07-2008
Tue, 01-25-2011 - 3:55pm

Hi Dee, so far it's been nothing but a nightmare. She's just over 3 weeks old now. We got our first good news today-London is officially at 2 lbs. She does have bilateral grade 3 brain bleeds. She needs heart surgery but isn't strong enough yet and Her intestines have ripped twice and she had surgery last Friday and now has two ends hanging out of her sides. One will be hooked to a colostomy bag when they start to function and the other a drain of some kind. I haven't seen her at all this week because she was in isolation to keep risk of infection down but hope to see her this weekend. Noone has been allowed to hold her yet as she's too fragile.

She's at one of the largest NICU's in the country and it's one that they send really sick babies too so she is in a good place. They told us not to dwell on the future as we have no idea whether or not she'll have brain damage because it's too early to know so we are taking that advice.

I so appreciate your post. It helps to know other people survived the nightmare. :)

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Tue, 01-25-2011 - 9:49am
The first thing you end up doing is redefining success. Making it through each hour then each day is a success as these little ones have so much against them. Noah was fortunate that only the first few wks of his life were critical. However, breathing was Noah's biggest issue & the doctors focused on it and ended up missing that somewhere along the line a brain bleed caused brain damage. Not sure if anything could have been done to stop the damage. Noah only had a stage 1 brain bleed at birth so they didn't focus on it. My girlfriend's grandson was born 4 mths later at 30 wks too and he had a stage 3. No apparent damage at all. Noah didn't want to breath on his own even after he was sent home, he would stop and they had him hooked up to an alarm for the first year to let them know. Many times the noise of the alarm would shock Noah into breathing.

When Noah didn't develop well with physical milestones during his first year, I applied pressure to have this checked out even though my daughter's doctor said he was 1. a preemie & 2. lazy. He wasn't sitting up at a year. He didn't reach for things on his own. Turned out that unfortunately, I was right & there were more serious issues. Noah has CP. His brain doesn't automatically sent message to his limbs on what to do physically & so he had to be taught everything - like crawling, walking, turning over, holding things, climbing stairs, etc. Things that we take for granted that a baby will do when they are ready. Noah's legs are affected by the CP. The muscles don't relax & so he wears braces to force his heels to the floor, gets botox shoots to relax the muscles & lots of PT & OT. Thank goodness for Wii as he loves sports esp hockey & doesn't realize yet that his legs may prevent him from playing this actual games.

But in general Noah is a happy, loving & extremely smart little 3 1/2 yr old. He has some sensitivities that are a result of being a preemie. Doesn't like loud sudden noise or will automatically fist when he is tired or frighted but overall his life is good. It's been very hard on my DD & SIL. First to deal with the sudden birth - we have no idea why. Then to deal with the 1st year of fear and now with having a special needs child. But we all agree that Noah is a fighter & he has taught us so much. He has brought our family closer together.

Karla, these are difficult times for you and your family. I'm sure your focus is on supporting the parents but don't forget about yourself. I had no idea how hard Noah's birth was on me until the 1st time I held him. He was almost 5 wks old & the rules in NICU prevented anyone but the parents from holding Noah. However, one nurse must have felt that I deserved a special treat for all my time at the hospital. She & my daughter surprised me by letting me hold Noah. I stood there & couldn't stop crying as he was put in my arms. It was such an emotional time and the first time I truly acknowledge how frightened I was.

I'm not sure if this helps but it's a video that my DS put together when Noah reached 6 mths to help us all celebrate. I still tear up when I watch this or look at the early pictures of his birth. http://www.youtube.com/watch?v=yoXUHTOqJyY

Again, my prayers are with you & please email me if you ever need to talk. It's hard for those who haven't been through this to really understand. My niece's son was born 3 wks before Noah & everyone was at the hospital & her home those 1st few wks. No one came to see Noah including my Mom. It was just immediate family. They didn't know what to say or what to do & so ignored his birth. Dee
Community Leader
Registered: 04-07-2008
Tue, 01-25-2011 - 8:45am

Hi Dee and thanks for posting. How is your grandson these days? So far we have not gotten much in the way of good news and things are still very up and down for my granddaughter. She's had a couple of emergency surgeries and is waiting to get stronger to have heart surgery. Each day we wake up and pray she lives another and her body starts to strengthen.

It's nice to hear success stories. :)

Karla
Community Leader
WALKING
EXERCISE and HEALTHY LIVING

Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Tue, 01-25-2011 - 7:43am
Thanks for the welcome, I think this is a board I used to be part of about 4 yrs ago & seem to remember some great chats. I'm only free in the evenings & weekends and I'm in the eastern time zone.
Avatar for coldfingers
Community Leader
Registered: 04-30-2000
Mon, 01-24-2011 - 11:18pm

Hi Dee!

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Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Mon, 01-24-2011 - 11:08pm
Karla, I'm new here but read your post and I'm sending you lots of prayers for your little one. My darling grandson was born 10 wks early almost 4 yrs ago now. He was a fighter & worked hard to survive but it was a very long time before he was ok. I know how hard this is on you & your family. The emotional stress is tremendous but science can do so much these days. There hasn't been an update to this discussion & so I'm hoping all is still stable.

Dee

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