Sorry I have been MIA

Avatar for sunset5000
Community Leader
Registered: 10-10-2007
Sorry I have been MIA
Sun, 08-26-2012 - 7:13pm

The past few weeks have been real hard for me.  I think you all know I have had some health problems the past year.  The main issue being that some days, I have extreme daytime sleepiness and cannot stay awake.  I have had days recently when I slept 20 out of 24 hours in a day!  Now, I also have a bad cold.

I have seen so many types of doctors (had sleep study, thyroid checked, heart checked, and more) and found all to be fine, except a slight thyroid problem, but doctor said it was not enough to make me as sleepy as I am.  Tried to call several of the doctors again last weeks, beggining them to tell me what to look at next because I cannot live my life sleeping all the time.  I have a family.  I have iVillage.  I have a part time job.  Also, it is not any of my medications, checked that first last year.

Hubby and I are considering trying to get me into the Mayo Clinic to be checked, since all the doctors cannot find anything to explain the tiredness.  When I called this past week, two doctors flat out said, "I don't know what to tell you......all your tests were normal...." 

There is Chronic Fatigue Syndrome, but I thought many doctors don't recognise that as a diagnoses?

My apology for being MIA, I do care about the board and will try to stay awake and be involved like I want to be!!!!!


iVillage Member
Registered: 03-20-2009
Mon, 08-27-2012 - 1:23pm

Hey Heide,

We know you care about us and this board and we want you to know we care about you.  I sure do hope that someone can solve the mystery of what is wrong with you. I know some doctors don't hold with CF and Fibromyalgia but they do exist and it may be the reason behind all your problems.  But I do believe some doctors are real good and do believe in it. The Mayo Clinic could help you, I am sure.

You look after yourself sweetie. We need you, you are such a great CL for us all.