Endocrinologist update

iVillage Member
Registered: 12-12-1997
Endocrinologist update
37
Tue, 08-07-2012 - 10:48am

Because of my high level of thyroid hormone, he's almost sure there is still cancer.  So I have to go get an injection (of thyroid?) two days in a row, then have a scan and do the radioactive iodine pill again. Oh joy. I'm just waiting now for someone from the doc's office to call and set all that up.  And if I do all that, and there is no sign of cancer, apparently he'll want to do a PET scan to be sure. It sounds like he's really sure I've still got thyroid tissue left and that it's cancerous.

I'm a little scared, but mostly I'm annoyed. Annoyed that I have to go into Milwaukee two days in a row for the shots, annoyed I have to have that RA again.  Annoyed that my stupid thyroid was so big they didn't get it all.  I thought I was done with all this! I feel good! Why doesn't this ever seem to end?

Okay, tantrum over.


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iVillage Member
Registered: 08-08-2003
Tue, 08-07-2012 - 9:43pm

Ann, I didn't know you had had thryoid cancer.  

I know it's such a bother but good that they are checking.

How far is Milwaukee from you?

Throw a tantrum all you want to here! 

Prayers for you!  

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iVillage Member
Registered: 09-25-2010
Tue, 08-07-2012 - 10:02pm
Well least he is being thorough about it Ann,
I know it's annoying but worth it all as you know.
Vent/tantrum away as we are here for you.
Lots of hugs & prayers for you :smileyhappy:




iVillage Member
Registered: 12-12-1997
Tue, 08-07-2012 - 11:29pm

Yes, last September I discovered I had a very overgrown thyroid that had grown toward the back of my neck instead of the front, so it wasn't discovered until it had destroyed one of my vocal cords (that loss of voice is why I went to the doc in the first place). I had it removed and had treatment for the cancer they found and later had a procedure done to my vocal cord that helped my voice, but I guess the treatment wasn't thorough enough and so I've got to go through the same old crap again.  I suppose it could be worse.

The area of Milwaukee I have to go to is around 30 miles I'd say - about a 45 minute drive - if traffic is good. I don't have to go there every time I see the doctor, but sometimes there are things he wants done that can only be done there.


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iVillage Member
Registered: 12-12-1997
Tue, 08-07-2012 - 11:34pm
Thanks. I'm just disappointed that the first iodine treatment didn't clear up the cancer. I'm trying to remember it could be a lot worse, and no matter how it seems now, it won't be forever, but sometimes the kid in me just wants to pout, kick things, and yell "No fair!" Going to bed now, will update more in the morning.

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iVillage Member
Registered: 02-25-2000
Tue, 08-07-2012 - 11:36pm

Awww..gee, Ann, so sorry to hear this news that you're still not finished with this ordeal! Believe me, I would be feeling all the same things you're feeling now too!! Keep your chin up and the positive thoughts going as much as you can. I'm glad your doctor is very thorough!! We'll hope and pray for the best!!

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iVillage Member
Registered: 09-25-2010
Tue, 08-07-2012 - 11:46pm
You have the right to be very disappointed Ann,
Although good they are catching ion now instead of later.
Letting that kid out is ok too for a bit <wink>
Hugs to you my friend :smileyhappy:




iVillage Member
Registered: 03-20-2001
Wed, 08-08-2012 - 7:38am
Just peeking at the board from afar and saw your thread. I'm sorry to read this and a big hug to you. Ann, I know it doesn't help to say it's better that they caught it , but it is and you'll be brave like you were before. We're here when you need to talk. (())
iVillage Member
Registered: 12-12-1997
Wed, 08-08-2012 - 8:43am

Thanks everyone for the encouraging words. I got my schedule of treatment and it all starts next Monday!  I was hoping for a week or two extra because of the strict low iodine diet I have to be on before the scan. Starting tomorrow I can't have any dairy, no fish, no sauces unless I make them, no canned food, and no eating in restaurants.  Which means no Chinese dinner Friday night with friends (pout).  We'll still go to the theater with them, and my friend said we "girls" will have to go out for Chinese food sometime after my diet restrictions are lifted.

So, my Hell Week will start with a trip to Milwaukeee Monday in morning rush hour traffic (bleah) to get an injection. And I'll do it again Tuesday. Wednesday I go to another hospital, not quite as far as Milwaukee, to get the radioactive iodine pill.  Then I'll have 2 days of staying away from people (probably, although no one's said that yet) and Friday I'll go to the Milwaukee clinic for a blood test (why can't they do that here?) and then right from there to the other hospital for the scan. Then I hope and pray the news is good and I can relax a bit.


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iVillage Member
Registered: 12-12-1997
Wed, 08-08-2012 - 9:10pm
Thanks, it's nice to know I have a place (or two) I can go to when I need to vent/worry/whine and hubby is tired of hearing it, lol.

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iVillage Member
Registered: 02-25-2000
Thu, 08-09-2012 - 12:09am

Ughhh..Ann..I know you're not liking this one bit and I don't blame you either!! Well, carry on, stiff upper lip (whatever that means), chin up and lots of good postitive thoughts!! You'll get through this detour and all will be well. So, the scan next Friday is what we'll pray for the most, a good healthy looking scan!! {{{Hugs}}} as you go through next week and do come and vent as needed, we certainly do understand!!

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