Test results

iVillage Member
Registered: 12-12-1997
Test results
23
Wed, 08-22-2012 - 3:26pm

My scan came back negative, but my thyroglobulin levels are extremely high. Higher than they were before. So my doc wants to do a  PET scan. I don't know yet when that will be - I'll have to call the cancer care place and set it up, probably for next week. If that scan shows something, he said that he and I will "have to have a talk".  That sounds very ominous. 

I'm trying not to worry, but I admit, I am worried. Why would my level be so high if there's no cancer? What treatment will I have to have if this PET scan shows cancer?

I should call, I guess.  I'll let you know what I find out.


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Avatar for neverstopping
iVillage Member
Registered: 02-25-2000
Fri, 08-24-2012 - 1:04pm
wordyone wrote:

In a case of be careful what you wish for . . . The clinic where I'm having the PET scan done called to say they had to reshedule my scan and the best they could do was the 17th.  I'm not too sorry it is going to be after the camping trip, but, then again, I'll have it hanging over my head longer (last year's camping trip I was worried about the surgery and losing my voice. It's always something).  And I'm supposed to eat low carb the day before and relax (relax???). The low carb diet won't be a problem, but we'll be returning the day before and I'll be doing some packing up and driving. Hope that's not too strenuous for them. I'll let Tom pack the heavy stuff and then I'll lay around when I get home - as usual, LOL!

Okay, it's on my calendar for the 17th. I would be feeling the same way, both worried and staying positive at the same time. In the meantime, carry on with your life the best you can with this hanging over your head. ::sigh::  Saying a prayer that all will be well. {{{HUGS}}}

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iVillage Member
Registered: 12-12-1997
In reply to: wordyone
Fri, 08-24-2012 - 3:00pm
Yeah, I'm not worried about the low carb. It's only for a day and I may try to stick with it, if it's not too bad. And, if last year is any indication, I won't worry too much about anything. I usually have too much fun to worry, lol.

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iVillage Member
Registered: 12-12-1997
In reply to: wordyone
Fri, 08-24-2012 - 3:03pm
Thanks for the good wishes and prayers. I'm not worried too much about the scan - it shouldn't be any worse than scans and MRIs I've already had, but I do worry about what's next if this scan shows there's still cancerous tissue. Radiation and chemotherapy come to mind (shudder). But, as dh keeps telling me, don't freak over what may be. We'll deal with whatever comes, when it comes.

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Avatar for neverstopping
iVillage Member
Registered: 02-25-2000
Fri, 08-24-2012 - 3:23pm
wordyone wrote:
Thanks for the good wishes and prayers. I'm not worried too much about the scan - it shouldn't be any worse than scans and MRIs I've already had, but I do worry about what's next if this scan shows there's still cancerous tissue. Radiation and chemotherapy come to mind (shudder). But, as dh keeps telling me, don't freak over what may be. We'll deal with whatever comes, when it comes.

Yes, that's what I would worry about too, hard not to even though you conjure up all of your good positive strength!! I like your husband's attitude, though, and I would feel that way also. I've always been that way...whatever happens happens, we'll deal with it and go on!! What I always tell my dd's, "We can do this!!"

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Avatar for grammyellen
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Registered: 04-04-2007
Fri, 08-24-2012 - 3:27pm

it's surprising how much you can eat on a low carb diet. i never feel bloated anymore or miserable after i eat and i think it's because of the way i am eating now. plus losing 17 lbs. hasn't hurt either, lol.

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iVillage Member
Registered: 02-25-2000
Fri, 08-24-2012 - 4:10pm
grammyellen wrote:

it's surprising how much you can eat on a low carb diet. i never feel bloated anymore or miserable after i eat and i think it's because of the way i am eating now. plus losing 17 lbs. hasn't hurt either, lol.

Ellen, I'm like that too now. I'm dairy free and carb free and, therefore, gluten free. Eliminating those foods took away all of my arthritis pain in my hands and elbows!! I think the only foods I miss are legumes and nuts. Of course there's other foods I would like to have, but I really don't miss them. What foods do you miss?? Congrats on losing 17 lbs!! That's fantastic!!

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iVillage Member
Registered: 04-04-2007
Fri, 08-24-2012 - 4:24pm
I do miss biscuits and gravy and grits. I am a true southern gal. LOL

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Avatar for neverstopping
iVillage Member
Registered: 02-25-2000
Fri, 08-24-2012 - 4:37pm
grammyellen wrote:
I do miss biscuits and gravy and grits. I am a true southern gal. LOL

Yes, you are!! LOL!! Those choices made me remember one of the meals I miss. It's at Village Inn and it's an egg substitute omelet with small multi grain pancakes and fresh fruit. The omelet is really good even though it's egg substitute, has a sauce on it something like picante and I use sugar free syrup on the pancakes. So good!! Darn, now I'm salivating!! LOL

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iVillage Member
Registered: 03-20-2001
In reply to: twig04
Fri, 08-24-2012 - 4:38pm
I don't suppose you could come home a day earlier? (so that you can really relax before hand...) Anyway, just let T do the heavy work,,
Still Ann, don't worry, I assume that your dr talked to the clinic (you said he said he would),,, so if they can wait that long, it's most likely it's just a scan to rule out..... don't ya think? (())
iVillage Member
Registered: 12-12-1997
In reply to: wordyone
Fri, 08-24-2012 - 5:23pm

If I come home a day earlier, I'll miss the get together and that's mainly why I'm going! I'm sure I'll be relaxed enough for them on Monday. This scan is almost always used to find cancer, which is the only reason my doc could think of that my levels are still so high. The PET scan will show if there's any cancerous tissue left. I'm hoping for nothing to show up, but if it doesn't, why are my levels so high? Time will tell, I guess.


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