I'm not a ghost...not yet anyway...

Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
I'm not a ghost...not yet anyway...
17
Wed, 09-12-2012 - 10:10pm

Hi all.  I have been gone for way to long and I first to want appologize for simply disapearing.  I've been through a great deal in the last few months.  I'm left a bit disoriented still.

Anyway here's what happened. 

It all started when I moved out of the apartment in Dallas.  I accidentally packed my cleaning gloves and instead of running out and buying a pair at the dollar store I decided in a moment of insanity, to go ahead and clean the apartment with bleach and my bare hands.  HUGE mistake.  It caused my hands to dry out and crack.  I was also gardening at the time and my hands became infected with a some sort of antibiotic resistant bacteria.  Three weeks I went daily to the clinic where they monitored my hands.  They would clean them and that often involved them digging around in my wounds.  At least they gave me something for the pain.  Still it was incredibly painful.  When I take pain meds, even asprin, I fall asleep.   I know that I have slept at least two and a half months of my life away.  It is just gone.  That's why I'm confused at to what month we are in, what day of the week I'm on and what number day it is.  I keep asking everyone.  I'm trying to get reoriented.

Anyway, after three weeks of this bacteria continuing to worsen instead of getting better they hospitalized me so that I could be given stronger antibiotics.  Just as a side note, I was convinced I had leprosy and they weren't telling me.  LOL!  This action caused my immune system (which I have problems with) to go into over drive and they had to give me steroids to shut it down.  That caused my lungs to fill with fluid and they had to be drained.  I was put in ICU and tubes were put down my throat.  That has always been my biggest fear in life.  That was major anxiety the second I found out and they told me about two seconds before they did it.  Seriously, they had to sedate me some.  

This fluid in the lungs thing went on and on.  I would get drained and given drugs to dry me up and I would seem all better and they would send me home and within 48 hours, I was back in ICU with my lungs filling up rapidly.  Another tube down my throat and me panicking all over again about the tube.  I would lay there and think, 'My grandfather died from his lungs filling up with fluid.  My grandmother, only had half a lung and it filled up with fluid right before she died.'   Well after I don't know how many weeks of this I was fed up and decided that if these doctors didn't know what the heck was causing this someone else would.  

So, I set up an appointment with a new doctor at a different hospital.  I chose a teaching hospital.  This young intern came in, she has a heavy accent because she speaks Mandarin Chinese as her first language, but with patience and her taking just one look at my records she asked me a serious of questions and then asked me if I had  Asthma.  I haven't been diagnosed with that before.  I thought I had asthma one time before and went to see a doctor who told me it was sinus problems and allergies. I do have bad allergies and sinus problems but this was different.  She left the room and went to find her attending and came back a few minutes later and told me that I probably had asthma and she would do a few simple tests to find out and I went home with an inhaler.

I got out of the first hospital two days before Hurricane Isaac hit.  I saw her the day before Isaac hit.  We were without power from the night Hurricane Isaac hit until about 6 days after he was gone. The heat was helpful to my condition at all but I muddled through and my aunt got her power back two days before us and we went to stay with her.  

The good news, with all of that, I have not had any fluid in my lungs and that inhaler is like a miracle to me.  The bad news, I want to slap some doctors at that first hospital.  I'm seriously ticked off that they couldn't figure something like Asthma.  It's not like it's all that rare.  That first hospital is where I initially went with my complaint that I couldn't breath and I though I might have asthma and they said it was allergies.  AND I'm kind of mad at myself for believing them when deep down inside that sixth sense of mine that little voice was telling me it was asthma.  I should have listened to it.  

Anyway, I'm back and I can't thank CM Tasha and CM Jenas enough for keeping the light on for me, since I simply just disappeared from the boards.  

I am sorry I just disappeared on you all as well.  It just happened so fast.  I had asked my son to try to get a message my cm's but that didn't happen.

I'm off to catch up with everyone.   

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iVillage Member
Registered: 10-11-2005
Wed, 09-12-2012 - 10:31pm
I'm glad your back & healthy! Yea sometimes these Dr's don't know their backside from a hole in the ground.
~~Sam stitches well with others, runs with scissors in her pocket. Cheerful and stupid.
Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Wed, 09-12-2012 - 10:37pm

Well, I have to admit that I feel like slapping some doctors  at that first hospital and I'm a bit more than ticked off at them.

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Avatar for vegiemama
Community Leader
Registered: 01-06-2000
Thu, 09-13-2012 - 2:35am

Oh goodness Karen!  What a roller coaster you've been on!  I'm glad they've finally figured the cause of your respiratory problems...and I assume your infected hands have finally cleared up too.  I'll get in the line for kicking the doctors who put you through all of that when an intern easily figured out what your problem is.  (Is she accepting patients yet?  You need to stick with her!!!)

We've missed you, and I'm glad you're back.  How is your dh doing?  Is he able to work, or is on (or going on) disability due to the MS?


Sue
Homeschooling mom to DD15 & DS11

CL of Homeschooling, Signature Showcase, Ectopic Loss, and Fertility Charting

Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Thu, 09-13-2012 - 11:46am

Hi Sue!  So glad to be back and see old familiar faces.  I am now that interns patient, she is my doctor.  It takes me more than a few minutes to translate her accent but we are both patient and it works out. 

DH will never work again.  He is on SS Disability.  We went in right before I got put into the hospital and a couple of days ago we got the letter saying he needed to report to the office to set up a payment plan.  We went in and they told us he got it.  We are still waiting for the official letter but we were accepted and he is getting the payment starting this month.  Yay!   We did not need to get a lawyer.  He had to go see a psychologist who gave him a verbal cognitive test and I guess my dh flunked it because based on that and his medical records he was approved first try.   I'm so relieved about that.  It will be six months before we know if he qualifies for Medicaid or Medicare.  We still have some money left in our 401K to help with his medical bills.  We are slowly liquidating it. 

I've started looking for work again.  It would be way better if I could find a job with benifits.  I'm not even sure if I got a job today that I could be up out of bed for a full nine or ten hours.  This whole thing has left me very weak.  Even when I had the flu for six weeks, I wasn't this weak afterwards.  I drove for the first time yesterday.  I went to the grocery six blocks away to buy meat.  I was so happy about that.  Funny how things change when your perspective changes.  I usually hate going to the grocery store and that one in particular but yesterday it was like going to Disney World.  LOL!   I'm going to Home Depot today!  ROFL!

 

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Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Thu, 09-13-2012 - 6:20pm

Oh, I forgot to mention the hands.  They did get better.  It took another three weeks int he hospital for that to happen.  I was convinced I had leprocy or that flesh eating thing I had seen on the news right before I was admitted.  That woman had her arms amputated. 

My brother even came to see me at the hospital.  The first time I saw him there I though, Oh NO!  I AM going to die!  We hardly talk, why would he come see me?   He did though. 

Went to Home Depot!  Then we went to eat at Applebees.  Not my favorite place but I do love the oriental chicken salad. 

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Avatar for vegiemama
Community Leader
Registered: 01-06-2000
Fri, 09-14-2012 - 12:39am

I'm so glad your dh was able to get disability the first time around without a hassle.  Hopefully the rest of the process goes smoothly.  I'm glad you're starting to be able to get out and about too, and when you're feeling better, I hope you can find a job you like.  Sounds like it would help out, anyway.


Sue
Homeschooling mom to DD15 & DS11

CL of Homeschooling, Signature Showcase, Ectopic Loss, and Fertility Charting

Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Fri, 09-14-2012 - 7:47pm

Hi Thia!  I'm so glad to meet you!  I was going to head backstate this weekend to say hi to you.  

I hope I am cured.   Forget better health,I want cured.  LOL! 

Glad that what you heard about is good.  I try.  :smileywink:

I look forward to getting to know you and working with you.

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Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Fri, 09-14-2012 - 7:56pm

A job would be excellent for many many reasons.  The money would help, insurance would help, and just getting out of the house and away from everyone would help. 

I over did it today.  DH has been wanting to go to the Apple Store so I took him.  After 15 minutes I had to find a place to sit down.  I went out of the store and sat across from the entrance on a fountain.  I started to feel even worse after 20 minutes of sitting there.  My son saw me and came out of the store and I asked him to help me to a bench and he did.  Then he went back in to tell his dad to hurry up and 40 minutes later they had not come out.  Finally I got up and managed to get into the store and told my son to find his father and tell him it was time to go home.  I was going to lay in the car until they were done.  It wasn't very long before they met me at the car.   How I drove home, I don't know.  I kept falling asleep at traffic lights.  Hubby and horns kept letting me know the light had turned green.  I fell into bed and that was that.  I woke up after dinner feeling bad but not as bad as when I came home from the mall.  Smaller, shorter trips are definately in order for now. 

At least I am eating well. 

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Avatar for nawleansdarlin
iVillage Member
Registered: 12-27-1999
Mon, 09-17-2012 - 7:40pm

Oh Veronica, I would never have driven if I didn't have to.  DH can't see to drive anymore and DS doesn't know how to drive.  We've been working on his fears of driving so that he can drive if it is needed.  I can't be the only person in this house who drives.  The whole time I was in and out of the hospital the family had to rely on other family members to drive them to the grocery, bank and where ever else they needed to go. 

I'm taking closer to home trips for a few more days at least.  I do feel like I am getting stronger each day.  No naps yesterday or today.  I'm really tired of sleeping my days away. 

How is work going?

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Avatar for vegiemama
Community Leader
Registered: 01-06-2000
Tue, 09-18-2012 - 2:46am

Oh my, that's scary!  You're lucky you made it home in one piece.  I hope ds will be able to drive soon and help you with that chore.  Take care of yourself and tell them to walk if they want to go somewhere!


Sue
Homeschooling mom to DD15 & DS11

CL of Homeschooling, Signature Showcase, Ectopic Loss, and Fertility Charting

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