Life, Lupus and Loss...Prayers please

iVillage Member
Registered: 09-11-2004
Life, Lupus and Loss...Prayers please
5
Tue, 10-07-2008 - 9:51pm

Those of you who have been around for years know that almost 5 years ago, on December 10th, after a long, painful struggle, my sister died of multi-organ failure due to systemic lupus erythematosus.


On Thursday...this Thursday, October 9th at 1;30 pm, we are meeting with a pediatric rheumatologist to see if my eldest daughter, BRE, has lupus. She has some of the symptoms and all of the positive blood work.


"Lupus is an autoimmune disease, which means that the body's natural defense system (immune system) attacks its own tissues instead of attacking foreign substances like bacteria and viruses. This causes inflammation. Inflammation causes swelling, pain, and tissue damage throughout the body. If you develop severe lupus, you may have problems with your kidneys, heart, lungs, nervous system, or blood cells. Lupus is the common name for systemic lupus erythematosus, also called SLE.


Although some people with lupus have only mild symptoms, the disease is lifelong and can become severe. But most people can control their symptoms and prevent severe damage to their organs. They do this by seeing their doctors often for checkups, getting enough rest and exercise, and taking medicines."


My sister, Geri, was 47 when she died. BRE turns 13 on Sunday.


iVillage Member
Registered: 10-01-2003
Tue, 10-07-2008 - 10:27pm
Beth, not only does Bre have my prayers, she also has my heart.
iVillage Member
Registered: 05-26-2007
Wed, 10-08-2008 - 7:49am
Beth: My love and prayers go to you and your family. shoeless
shoeless
iVillage Member
Registered: 04-04-2005
Fri, 10-10-2008 - 11:34am
How did things turn out, Beth?


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Health,

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iVillage Member
Registered: 04-07-2003
Fri, 10-17-2008 - 7:50pm

Oh my oh my, I have been so out of the loop these past few months.

iVillage Member
Registered: 09-11-2004
Sun, 10-19-2008 - 5:22pm

Hi Leslie


It has been a whorl-wind.