Hi I'm new

iVillage Member
Registered: 04-12-2003
Hi I'm new
4
Tue, 10-14-2003 - 11:54am

Hi, I am new to this board. I recently have embarked on trying to find out what is wrong with my heart. I have slow and fast heart rates. amd low and high bp. I had a heart acth done, and was fortunate to have a clean one. The cardiologist thinks my problem may be cardiac syndrome x and artial coronary spasms. We know for sure I have spasms since this showed up during my cath. I assume I have been having the problem for some time, but had ignored it. I was the caregiver to my late Mom, Late hubby and just recently mt Dad, whom I lost in May. So I always blamed everything on stress. I read Marley's story and see alot of myself in there. This past weekend my fiance and I were at the ocean and my bp was out of control most of the time. So being relaxed does not effect it.


I am 46 and just moved in with my fiance, moving from MI back to GA. This was suppose to be the best time of my life. I am very frustrated with the constant changes in meds. trying to get one to owrk. The drained feeling, that is most of these meds side effect. And after having been the caregiver for so many years, not real thrilled with being a patient. Not to mention that my fiance, Royce is scared to death half the time about what is going to happen next. I never have any warning when these spasms will happen and never can take a chance they won't bring on a heart attack. according to the doc.


So have any of you heard of this or have it? And how do you deal with the day to day fight to be normal again? Oh and my work is no more. I am an EMT specialist, so that is now out. I feel like after having taken care of others it was my turn and I was so looking forward to my new life, only to have the rug pulled out. I am having to totally re-invent myself from what I was. Any suggestions or insight would be most appreciated. Betsy

iVillage Member
Registered: 03-31-2003
In reply to: breinbolt
Tue, 10-14-2003 - 12:16pm

Hi Betsy...


I am so sorry to hear that this is happening to you. Especially at this point in your life when you should be "out there" and enjoying yourself.


I know what you mean about taking care of everyone else. I'm that "person" in our family too. I'm only 37 though... but nonetheless I've been taking care of people since I was a teenager.


I also know what you mean when you say that the symptoms are not just brought on by physical and/or mental stress. I was sitting in church when my symptoms first came on the strongest. And stress.. I really have no stress... not when I look around me.... I have a cousin who

iVillage Member
Registered: 09-30-2003
In reply to: breinbolt
Tue, 10-14-2003 - 12:42pm

Betsy,


Welcome!

iVillage Member
Registered: 04-12-2003
In reply to: breinbolt
Tue, 10-14-2003 - 3:04pm
Thank you both so much for the encouragement. I just got off the phone with the cardiologist office and am going in to have a bp check first thing in the am. I get so tired of the up and down, chest pains, palps and arrythmias. My bp has been hanging out at 165-170/105-110. I seem to always have a headache. So tomorrow I am going to ask for a different bp med. I need to get that portion of the problem under control, now. My Mom had several strokes during her life and I am not going there. They tell me the bp is from the narrowing of my microvessels and microvascular system. Whatever, just give me something that works. I get an attitude just about everyday about the guinia pig thing. But i am glad i found this board. I have weathered several storms thru the boards on ivillage and am always thankful to find such caring people. Betsy
iVillage Member
Registered: 03-31-2003
In reply to: breinbolt
Thu, 10-16-2003 - 9:35am

You're very welcome Betsy. I know how it feels, just to ce able to chat with someone who's actually dealing with the same issues, somehow makes it a little easier to handle. I too have found the ivillage boards extremely helpful.


I think you're absolutely right about at least getting "one part" of the problem under control. And thats obviously your BP. They've done that with me.... and it makes a big difference. Are you not on any BP meds at all?


And I hear ya loud and clear on the "guinia pig" thing too. Ten years ago