Cardiomyopathy

iVillage Member
Registered: 01-07-2005
Cardiomyopathy
2
Wed, 02-09-2005 - 3:53pm

My mom was just diagnosed with cardiomyopathy after having back surgery and having breathing complications after surgery. She was in CICU for 6 days, but is home now, thank god. I've done some reading on this condition and it doesn't seem like the prognosis is very good. I'm reading anywhere from 5-10 years. I'm very worried about her changing her lifestyle and what this is going to mean for her life. Any feedback from anyone who has delt with this would be greatly appreciated. It's been very difficult to get any information out of my father in regards to my mom's condition. I think he is in denial that anything is seriously wrong. Plus, I've had issues with them keeping information from me in the past, so I'm having trouble trusting anything they say. Help!

iVillage Member
Registered: 04-14-2003
In reply to: ella073
Fri, 02-11-2005 - 3:44pm

Sorry to hear about this unfortunate finding with her surgery.

Hugs,

Cecilia

iVillage Member
Registered: 04-15-2003
In reply to: ella073
Sun, 07-17-2005 - 11:58am
I have cardiomyopathy, I was diagnosed 2 years ago after I had my second child. I am waiting to die. I know that sounds harsh but in essence that is the summation. It is very confusing make sure that your mom gets the best medical attention check on the background of the cardio specialist he maybe only practicing medicine. Johns Hopkins has a wing dedicated for this illness and you can contact them and they will go out of there way to help you understand and take an interest in assisting her local doctor give her the best medical care. Ask her to get a copy of her medical records and fax them over then together they can all set up a plan. In my case they gave me a stay of execution I am now stable. On a personal note your mom has been given a terminal illness and is dealing with that emotionally. Make sure that someone goes with her 4 ears are always better than two and being once removed those two ears will hear more than the ones that are attached to the illness.