Just wanted to come back and update agai
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|Mon, 09-20-2010 - 12:18am|
I know how frustrating it can be when you are looking for help and answers and people do not update, etc. I've been there, so I'm updating again. Some of you may remember me from my previous canverous hemangioma post or the propanolol posts.
My daughter did the 72 hour treatment in Childrens to see if she could tolerate the propanolol and she could. (this was in February)
We saw an improvement right away and then it just stayed that way for a few months and then we saw a dramatic improvement.
When we went wo wean her off, (twice now) the hemangioma got larger. We think it's due to the dosage given because the amount has not been changed since she first started this in February at 6 months old. She is now a year old. Anyway her dermatologist doesn't want to increase the "dosage" unless we have to because then whe will have to do another