It's been quite a while since I've posted here.
I am not sure of this but can they also do a 30 day study?
Trish, we've never had that done. Maybe they can do a week or two holter and see if it keeps happening? Though I guess just waiting for it to happen could be potentially dangerous as well. I hope the testing goes well, whatever you have done.
That's really interesting about the syndrome. Were they looking for that one in particular? Gabe had a FISH test when he was born and just had another test done in the spring. Nothing was found but he has similar issues: heart defect, vision issues, sensory processing issues, anxiety disorder, and Pica. I really feel like something is there but there's only so much testing they can do!