Keli--Re: Fibro
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Keli--Re: Fibro
| Mon, 09-26-2005 - 4:27pm |
Have you talked to you GP yet or made an appointment with a rheummatologist?
| Mon, 09-26-2005 - 4:27pm |
Have you talked to you GP yet or made an appointment with a rheummatologist?
Hey Marci,
My pdoc TOTALLY believes in Fibro and she says the same thing...that it will both CAUSE depression and that flares are linked TO depression. So, its a horrible cycle. She actually knew a lot about it. She said 3, now 4 (me) of her patients have it. 2 BPers, 2 Depressives. She says that my wearing myself completely down physically, mentally, and emotionally over the last severaly months has probably caused the huge flare I just had.
Anyway, I didn't make the appt with GP. My flare has calmed way down. Almost no pain now, except a small amount that's pretty constant in my joints, but Ibuprofen is handling it. She said my GP is welcome to call her at any time about this or my BP or PTSD or any of it, as its all closely related at some level, somewhere in my brain.
Its an added burden that I so didn't want to have to deal with. But deal with it, I will. I'm strong, so I've been told.
Love and Hugs,
Keli
Hi Keli,
Just to add my 2 cents here. I am a 5 year sufferer of FMS. I know that depending on my pain level my mood will either be good or bad. Lately with all of the moving, and ovedoing it I have done has started to wear me out. The fatigue, and pain has started to take a toll on me. Last night Rick gave me a back massage but I had to stop him half way through it because I just couldn't handle the pressure of it. It hurt too much. Sitting here right now typing this out to you is dificult because my back and neck are just horrible. I have muscle relaxers to take for it, but try not to during the day. Especially now that the girls had a 4 day weekend. ( The state of GA took today and yesterday off to conserve fuel.) Have you gotten to the point where the muscles between your ribs start flaring? If you haven't, I hope you never do. That has to be the worst part of the FMS I have had to this date.
I have to make a appointment with my newest rheumatologist so we can treat the rheumatoid arthritis and the FMS that I have better than we are now.
If you have any questions or just want someone to unload on, I am here.
Have a good day. ((((((Keli))))))
Love and hugs,
Hey Cyn,
I hate this Fibro stuff...I was dxed with it about 2 years ago during one of my psych ward stays...dunno why they dx'ed me, but they did...this is my first really BAD flare...I've been VERY VERY VERY stressed, and VERY depressed the last 2.5 months. My body and brain got SO worn down that I was almost non functional. Pdoc and tdoc seem to think that was my "trigger" for the flare. I was physically and emotionally and mentally just worn out. My stress level was off the charts literally. One day I woke up and out of the blue, in so much pain I freaked! I didn't know what was going on. Now, for months, I'd had this pain and stiffness in my knees. GP said it was probably early onset arthritis...no sweat. Didn't really hurt much, but my knees did creak more and more as I went up stairs, etc. But this pain was horrific and in ALL of my joints. EVERY one of them. Every knuckle of my fingers, my wrists, my knees, my elbows, my shoulders, my neck, my hips, my ankles, even my toe joints...it got worse, yes, even worse...I could barely move...then my depression got worse too...then I went back on an a/d (pdoc had taken me off all a/d's for 2 months, hence the really bad episode) Prozac...I'd also started noticing that while my joints were very stiff and hurting, my muscles felt like they were on FIRE and I was totally worn out all the time no matter how much sleep I'd get...then about 3 or 4 days ago the pain start letting go some...my joints still hurt, but Ibuprofen alleviates it...I guess I still need to go ahead and make the appointment before the next flare happens...I'm trying to stay away from as many stressors as I can...trying to get as much rest as I can. I don't know what else to do. That was so bad. I was working the whole time through it too. I was in pain, depressed, suicidal, and very miserable. It was a bad time for me, the last couple months.
Luckily, I've come out of the depression cycle. I'm on different meds, and I really HOPE against HOPE they work finally. I'm so sick of the whole thing I don't know what to do. I want Lamictal to work so badly. I'm only on week two of the starter pack for people on Depakote (i'm not) so I'm moving up REALLY slowly to avoid (try to avoid) the rash thing so I can continue taking it. I don't mind going up slowly, if it means I can keep taking it and it will work.
I'm also on 20 mgs of Prozac again and it seems to be working well. I'm out of it for 3 days til Friday, but it stays in your system for a while, long half life, so I should be okay. Topamax 200-300 mgs, as I need it...Risperdal 1-2 mgs...and Ativan 1 mg 2-3 times a day as needed all day long...I hate going on pain meds too, but so be it, if I have to...I just have to have something that I can function on at work...
Anyway, thanks for letting me know you deal with FMS too...I probably will have questions, poor Marci gets bombarded over here!
Love ya...
k.
Hi Keli,
I know exactly what you are talking about with pain. I have had RA for
Don't you dare apologize...I've actually been wondering about the RA aspect of things myself...with all the stiffness I experience. Your info is wonderful, talk away!
I am going to make that appt. for myself too. I REALLY need to exercise, but I can't. A little small walk here and there sets me off every time. I still do it though sometimes, just because I need to.
Love and Hugs!
Keli
Keli,
I asked the doc about magnesium and she says there is no scientific evidence to back it up.
What about stomach issues? Like reflux and heartburn and "rumblings"???? Do either of you have these problems??? They are getting worse too...another reason I came off Lithium, so I could take something to ease that...and Motrin!
:(
Dang it all to you know where!!!
:)