Can one of you who suffers from fibro

Avatar for missyflanders
iVillage Member
Registered: 03-26-2003
Can one of you who suffers from fibro
6
Fri, 10-21-2005 - 1:29pm

tell me what the pain feel likes, where it starts etc. Since I am now stable, yet still in pain, I may be dealing with that now and not just physical problems from depression/mood problems. I do not want to start racking up medical bills for it though. I have had one doctor say I had it (and also diagonosed a mood disorder and sent me to pdoc) and one say I did not (she actually touched me to examine me which the other doc did not).

For me, my hands ache at the knuckles, my hips ache. They hurt to even sleep on some nights. Some days are worse than others. Lately, my knees have been bothering me and even my feet. The pain in my arms has radiated up the arm to my elbows and shoulders too. It seems to be joint related. I have been tested for RA, Lupus, MS, Lyme disease, basically everything.I have even gone to a celiac disease specialist to rule out the pain coming from that (since I have been diagonosed and don't do a good job following a gluten free diet).

Who wants to play doctor?

Missy

 
 
Avatar for schitz
iVillage Member
Registered: 02-06-2004
Sat, 10-22-2005 - 12:44pm

Sounds a lot like my pain, which is basically everywhere all the time, although I will find a particular joint hurting more than the rest some times. I have generally achyness as well as stabbing and shooting pains throughout. I don't know if that helps.


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iVillage Member
Registered: 11-18-2003
Sun, 10-23-2005 - 11:14am

Missy,


I personally don't have any clue:( I just wanted to pop in here and say I hope you start feeling better real soon. It sucks to have to go through this and not know why! Hopefully someone will have some more insight for you that actually has fibro.


I know my knees have been giving me fits for a few months now, but I think that might just be arthritis. Although my acupuncturist says it's from stress. So, we'll see if a few more treatments gets that under control;)


Hang in there sweetie and keep us posted.


Love & Hugs,
Traci

iVillage Member
Registered: 01-23-2005
Sun, 10-23-2005 - 1:47pm
I'm sorry to hear about your pain. I was checked for FMS, but thankfully doc said 'nah'. I do have frozen shoulder syndrome: I'd never heard of it til I had it. It takes anywhere from one year to three to work its course. My right arm started over a year ago and six months into that my left arm kicked in. It's really painful to even just reach into the dryer to get laundry out. It's been way too long since I've shaved my armpits (lol). Sorry, gotta inject humor where I can.
I also go to an acupuncturist and it really helps manage the pain though the stiffness is still there. Just time I guess. I miss using my arms.
Mary (^_^)
iVillage Member
Registered: 03-25-2003
Mon, 10-24-2005 - 7:48am

It sounds a lot like MY pain too. I was hurting all day yesterday too. Every joint I have will ache...my knuckles, knees, shoulders, neck, elbows, toes, feet, ankles, YOU NAME IT! Then to add insult to injury, my muscles will start SCREAMING too. I get tired easily when I'm in a flare, I have stomach issues, like heartburn much more frequently, and now I'm having trouble swallowing my meds in the mornings which I've read CAN be related. I don't know.

I've got to get to a Rheumatologist for meds management, but I am fighting it tooth and NAIL! I don't want it. So I take Ibuprofen and Aleve to ease the pain (it helps, only a little).

Sounds like it to me, hon. There's a good Fibro board here at IVillage. I went to it once or twice, but I got most of my advice here from Marci, Amanda, and Cyn.

Seems a lot of us have it...has GOT to be related to something somewhere. My pdoc said there was a depression relation SOMEHOW and it will CAUSE depression, but she didn't know what/how, etc.

Love and Hugs,

Keli

Avatar for cla3a
iVillage Member
Registered: 03-25-2003
Mon, 10-24-2005 - 9:44am

Hi Missy,


Just thought I would add a few things here. FMS is characterized as a "pain syndrome". While there is no one cause for it, there are also no idea of how to "cure" it. There are some doctors that thing that FMS is just a band-aid dx for something a hypochondriac says they have. There are other that truly believe that FMS is a real medical condition. The symptoms you

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Avatar for missyflanders
iVillage Member
Registered: 03-26-2003
Mon, 10-24-2005 - 4:26pm

Thank you all for the help. I also posted on the fibro board and got some names of some doctors. I just don't think I am ready to deal with that. The cymbalta I take for BP has lessened the pain on most days for me and I take advil with it on the other days. I also bought a book to read up about it a little bit. I bought it used online so it will be a little bit before it comes in. I really don't want more meds. I am going to continue exercising (swimming) and listening to my body. I will rest when I need, take baths etc. Guess I just needed to hear from you girls that it sounded like fibro and not like I had some major medical thing going on (which I really already knew).

Missy