Donna, and everyone...

iVillage Member
Registered: 03-25-2003
Donna, and everyone...
7
Tue, 12-06-2005 - 8:11am

Hey honey...no, you didn't trigger ANYTHING! Sorry if I made you think so...my pain isn't related to the Lamictal...I already asked about that...its CLASSIC RA. Yesterday and last night were REALLY BAD! I can generally handle it okay, until I'm in so much pain I just want to cry and knock myself out somehow...which is basically what I did. Problem is, it doesn't last long...I'm back up in about 2 hours max. Which is making me a bit manicky in the mornings cuz I don't sleep much at night...then I crash down in the afternoons, when the pain is at its worst.

I can't get up and down my stairs at home sometimes without crawling. Its very upsetting. I can barely even walk sometimes, its that bad. I have to hold on to something when I get up and down at work, because when I sit at my desk, I get stiff and my knees go out when I try to stand up...my fingers and hands are swollen and hurt constantly as do my feet and toes and ankles. My knuckles are hot in temperature, but my hands get cold and stiff. My neck and shoulders hurt to the point that I can't move my neck sometimes, yesterday was one of those times.

I'm sad...but most of all, I'm scared...and I'm in pain...and I'm pretending to the world that I'm okay. I'm not okay. I have okay moments...but all in all, I'm not okay. I've called my GP again, and I can't get anything other than what I'm taking now. I bought some Tylenol Arthritis this morning because I'm desperate and just want something to work. January 13 is a long time away.

I know this isn't the RA board...but you guys are my best and only friends in the world...and I need you. I tell my dh how bad I am, well, not really...just that I'm in a lot of pain...my ds doesn't get it, but I don't tell him...he's a kid, and he doesn't need to hear it...I just tell my mother that I'm hurting...I don't tell her how bad RA can be, and that I've got a bad case of it right now. I do what I have to do. I get up every morning and come to work and hurt...I go home every day and hurt.

Its not a wonderful life right now...I'm trying to stay positive...but its very difficult. I don't want anyone to feel sorry for me...but I want my mommy. I don't want to cry and hurt anymore. There is no end in sight with this one...with BP at least there was an END in sight...I could deal with it because I knew that one day the episode would pass. I don't know how to do this.

Love you all,

Keli

iVillage Member
Registered: 04-06-2005
Tue, 12-06-2005 - 8:30am

hon, of corse there is an end in sight...its Jan 13th !!

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God could not be everywhere, so

Avatar for cla3a
iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 12:34pm

((((((((((Keli)))))))))
Hi hon. I am sorry that you are suffering so much. I still can't get your damn GP. Have you called the rheumy's office, and put yourself on the cancellation list? It hurts me to read of how bad you are hurting. I have been there, but luckily

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iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 12:46pm

Hey Cyn,

Thanks, I've been wondering where you were! The stupid Tylenol crap isn't working...lol. Knew it wouldn't, but had to try.

I'm taking Glucosamine...and flaxseed oil supplements...didn't know what else to try...

I don't know why my GP is acting so stupid. I will keep the ER in mind though. I'm just soooooo tired...I don't get any good rest at night...in fact, I'm seriously thinking of taking a Seroquel tonight, just so I can sleep. I'm up and down ALL night long. That can't help.

Yes, I'm on the cancellation list too, at the Rheumy's office and I'm glad you told me about Eric going with me to the appt. I didn't even think of that.

I don't have splints, I wouldn't even know what to do with them. I keep wondering if ace bandages would help my knees...

I really really really think some real rest would be so helpful...I'm totally exhausted. My mood is really starting to suffer too...Depression is setting in, big time.

Oh well, I know I can do it...it just sucks.

Love you too,

Keli

Avatar for cla3a
iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 1:46pm

Keli,


I have done a little research and found that Bromelian looks like a good swelling reliever for athritis,and other kinds of conditions. I found it at drugstore.com for 8.99. It is made by GNC. It is all natural and is a extract from pineapples. I just might buy

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Avatar for suziq_3
iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 2:32pm
i haven't read the other posts(responses) but this makes me mad(FOR you of course!)NO ONE should be in this much pain!
i gotta tell you i feel like scoring some illegal pharmaceutacals & sending them to you so you can get a good night's sleep.(but you didn't hear me say that)...there are too many pain pills out there that aren't addictive or at least a sedative to get you a night's sleep.i also can't stand this wait that people have to endure when they are in real trouble.it makes me sick.lots of hugs & PT
.............susan
iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 2:45pm

Thanks, SuziQ...

I have some Seroquel at home and am seriously thinking about taking one tonight...dunno. I get so mad and frustrated too and the medical profession for making us wait too...you wonder why people self medicate!!!

Love ya,

Keli

Avatar for suziq_3
iVillage Member
Registered: 03-25-2003
Tue, 12-06-2005 - 3:19pm
oh by ALL MEANS take the seroquel.if you arent taking it all it will do is help you sleep.as a matter of fact my gp gives it to his fiance when she has touble sleeping.please take it!