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|Fri, 10-05-2012 - 1:15am|
I was 34w 5d when I gave birth to my daughter Aislynn on 9/26. Seven days before I'd been informed that she had grown a rare choroid plexus tumor that took up almost 2/3 of her cranium. We had a week before she passed away to process it all. This is such a rare tumor that there is no research. I'm a nurse and I'd never heard of it, the Pediatric Neuroradiologist had only seen it twice in 10 years of practice. I was mortified.
I'm beside myself but can't lay in bed all day, I have one year old b/g twins that keep me functioning though some days (it's only been a week) are harder than others. You see, she was my first spontaneous pregnancy to make it passed 9 weeks. My twins are IVF miracles after 13 years of trying with two different husbands and 6m/c. This was the worst thing I could ever imagine. I spent 10 years off and on on the TTCYFC board, now I find myself here. I look forward to getting to know you ladies and hopefully we can find some solace together.