Kids get straight to the point!

Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Kids get straight to the point!
3
Tue, 10-09-2012 - 11:16am

DGS has cerebral palsy which mainly affects his legs & small motor skills in his hands. This week he informed his Mom that "he couldn't kick the ball very hard because he has EVIL palsy." Apparently, he was quite serious & she had a hard time not laughing. He likes the new name he has created for cerebral palsy & has been using it since.

Dee

iVillage Member
Registered: 02-13-2001
Tue, 10-09-2012 - 11:25am

Awwww! "Evil Palsy". Sounds like a very intelligent young man to me. When was your DGS diagnosed with Evil Palsy? I completely sympathize with his Mom having to stifle a laugh. Over the years our Matt has demonstrated some odd things that come along with the autism and we've had to keep from chuckling in front of him because we knew the situation was serious to him. 

Sharon

Avatar for deenow17
iVillage Member
Registered: 10-12-2004
Wed, 10-10-2012 - 2:10pm
As to when Noah was diagnosed, that depends on who you ask. I told DD when he was 3 mths that there was a problem & my Mom confirmed at 6 mths. I had a cousin with CP. At a year, I finally had DD convinced but her pedi said he was just too fat to roll over, move, etc. He wasn't that fat. At 18 mths, the premie clinic agreed he needed an MRI & finally at 2 1/2 he was formally diagnosed.

Everyone kept saying that he was 10 wks early so that is why things were delayed but the poor baby never just did anything. He never reached for a toy. He just sat there smiling whereever you put him. He had to be taught to roll over, reach for things, sit up, crawl, stand walk, etc. He learned to walk before he learned to crawl as I would stand him on my ft & walk around the room with him which he loved. Somehow, in spite of 3 mths visits for 3 yrs to the special premie clinic, they ignored the problem for half that time. He was very tiny when born but around 3 mths started gaining weight & lenght. So by the time he was 6 mth, he was in the high part of the range for a normal six mth old. I think this mislead them.

Dee
iVillage Member
Registered: 02-13-2001
Wed, 10-10-2012 - 3:27pm

It's definitely not difficult to fall into a kind of denial. We thought the same thing about Matt. He was born 2 months early and weighed just over 2lbs. We too believed his delays were due to his preemie status and that he would eventually catch up.  When he still wasn't talking or even making an attempt to speak at two years old, our pediatrician referred us to a specialist. This is when we got the diagnosis. Even though we suspected something was awry...it still hit us like a freight train. He's an awesome kid though and he's our hearts.

Sharon