Karen.. brief update- not brief note
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| Wed, 03-23-2005 - 4:49pm |
Hi Karen,
Not much to say- I do miss my RE's massive staff that answered all questions immediately! I like my OB - great doctor.. but it's not the same attention- with my RE and the clinic- they *know* that anyone calling is suffering through IF, m/c scare.. anything.. It took my Ob a week to get back to me- and a nurse ended up telling me my results since the dr has been so busy..
So.. my results - the urine test has to be redone (I had a feeling since I saw the sterile instructions after I sealed the cup.. opps).. the CBC was fine except for slightly lower MPV, mass platelet volume.. the Ob said it was nothing.. but since I tested + for a C677T gene (MHTFR) I am going to ask for folic acid and vit b analysis to make sure it's ok. I posted on an immunilogical forum to see what they think - any association. I am on extra folic and vit b12 (aside from prenatal) due to that extra gene.
I go in for another u/s in two days (friday lunchtime)- I am nervous.. I am still just living week by week- starring at the calendar and waiting for appointments.. pathetic I know.. If all is well (which I pray it is)- I will be 10 weeks on Friday.. I have minimal symptoms which doesn't help.. There is a pattern that the closer I get to u/s (the moment of truth) the more I wake up at 4 am and toss and turn and just can't sleep that much. I am so scared..
How are you doing? Has the pain gotten better? Have you heard anything back yet? I hope you're doing well.. It feels like forever since I wrote to you.. I'm reading your last post- I also work three days a week! i cut back after the molar pregnancy scare (I had construction of our new house to handle- battles with contractor constantly/new job stress and 12 hours days, and then became completely devastated with another loss and being told it could be cancer and hear hystorectamy possibility.. I just lost it.. tried quitting but they really needed me then and I was one of the first employees at the startup- our first employees are all close) - I just started this schedule mid January.. if all goes well, it will be great to be able to work and not put the baby in daycare 5 days.. It sounds like it works well for you.. and nursing.. reading anything like that gets me so excited (is that crazy! or stupid to get so excited when I'm only 10 weeks?) - motherhood!!! being a family!!! seeing DH as a daddy!! grandchildren for our parents!! (they are getting up there in age- this worries me too)
Do you have more frequent cancer checks given your family history?
I hope you're doing well and hope to hear from you soon, ((Karen))
Laura

Hi Laura,
Yes, I can certainly relate to this horrible waiting period. And yes, you don't get much sleep when you need it the most too. It really stinks.
So do they have you on aspirin for the MHTFR? Yes, extra B6, B12 and Folic acid. I took 200mg of B6, 100 in the am and 100 in the PM. It also helps with morning sickness.
You have another U/S this friday, right?
I'm doing ok. Had my appt yesterday but we are waiting on the genetic tests before we start discussing our options, additional testing etc... so not too much to report there.
We got devastating news last night though. My BIL was diagnosed with pancreatic cancer. He and my SIL are only 28 and have two young sons. They both are in college working very hard for their futures. I lost a very DF to this cancer and there's no cure and it's terminal. My heart is just breaking for them. They are in Arizona so it's so hard not being there. My DH's family are very close and we love my BIL to death. He's a wonderful guy and has been so good for my SIL and they are so in love. It's so unfair. I went throught this with my DF And I just hate that they have to go through this. It makes me want to scream.
I'm sorry to share my sad news. I just felt like I could, but I hope that I didn't bring you down.
Your sweet little baby is going to be perfect. The world needs more joy. Try to eat at least a bowl of cereal a day, lots of fresh fruit and veggies, that in addition to the supplements should keep you safe on that end. Also, drink at least 3 glasses of milk a day or have some yogurt. If possible eat organic, I'm a huge proponent of organic but we can talk about that later.....smile. Get out for some easy walks in the sunshine too, good for your mood and your health.
Grow little baby grow....I want to see pictures of you very soon.
Oh BTW....symptoms often wane at about 10 weeks, but never fear they can come back even worse for some, but hopefully not for you. My got slightly better at 10 weeks but then came back so bad at 11 and I was very sick until 20 weeks. I hope that's not the case for you.
Big hugs....Karen
Hi Karen,
I am so sorry about your BIL- that is horrible news.. They sound like a nice couple that has their entire happy lives in front of them. Is his situation bad enough taht they know it's glim? i am hoping it was detected very early and that increases their hance of successful treatment..
One of my best friends is actually with her father today- he has surgery tomorrow for the same cancer. I knew it was serious but had no idea it was that poor of a prognosis. I jsut called her to wish her dad well (after i read your note).
Do you know a lot about MTHFR? I posted to a board/dr who specializes in immunilogical issues and she told me that I should ask for a repeat CBC to monitor the low-ish mean platelet volume.. (I had told this dr about being + or one gene).. I asked the dr again why - I'll get an answer tomorrow- but it has me wondering why this is something she felt was important. I already know my OB doesn't think it's anything (they told me).
yes- big u/s is tomorrow.. *every u/s* is big for me.. I was starting to feel kind of good after having 2 u/s's during the 8th week and everything was progresing on the dot.. and then I read some comments (from people already beyond 10 weeks) on another board where they were commenting how they noticed the *9th* week is when everything seems to go wrong.. So now I'm super panicked (plus that it's been almost two weeks since I saw the baby).. I am praying the baby is growing well and is healthy.. I want uneventful dr meetings!!!
I'll post tomorrow.. thanks again for being here! DH is great but he's not as understanding of that pit fear feeling in my tummy I have every day.. it helps a lot to have someone who understands, has been through it AND has successfully given birth to a healthy baby! (Karen)
Laura
Yes, the prognosis for pancreatic cancer is terminal. His is worse b/c it's already in his liver as well. All pancreatic cancer is bad, there's no cure and very little, if any, survival. It's just devestating. I lost a very good friend to it and it was horrible, it just took away his quality of life very fast. I'm so incredibly sad that they have to go through this. I adore my SIL and I'm so sad that she's facing this nightmare. She's been through alot in her young 28 years.
Check out this website, there are a few girls on there with the same blood clotting disorder. I only know a little.
http://messageboards.ivillage.com/n/mb/listsf.asp?webtag=iv-pppgrecmiss&nav=start
I'm sure someone can give you some pointers on what to expect or what tests you should have etc...
Good luck tomorrow. I know your nervous and anxious, there's not too much I can say to make you feel better. Just believe......Post ASAP.
Grow little baby grow....and do some good dancing for Mommy tomorrow.