My Doctor was WRONG!
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| Fri, 02-04-2005 - 10:32pm |
I am just really upset right now. I don't feel like I can trust my doctor. Since I was 15 years old I have been diagnosed with Crohn's disease. Now (at 24 years old) my doctor informed me that based on some new tests (colonoscopy) he 'believes' it is Ulcerative Colitis. I informed him I was under the impression that it was Crohn's for 9 years can it just switch??? And he said that I fall under a small percentile that is actually "undiagnosable" so it COULD be crohn's still and COULD be ulcerative colitis...but we will never know for sure which one it is.
WHAT IS that???!?!?!
I mean I have been on Pentasa for Crohn's for almost a decade now. So I could have been on the wrong medicines this whole time! I remember the days out of remission when I was on 25 pills a day. I remember the weight loss, the hair loss, the vomiting all of it. I'm scared about not knowing. I don't understand how he could have been so sure, and now not know at all and in fact, say that it will forever be indeterminate.
I am just really frustrated by this. It's like all those hospital visits were for nothing because I actually know nothing further than when I went in before. I'm sorry for ranting here but it is really the most helpless feeling I have experiences in quite some time!
Any advice would be greatly appreciated! Thank you!

Hi isassygirl3, and Welcome to iVillage
First NEVER ever feel sorry for ranting
Hi Sassygirl3
Welcome to the board.