My Doctor was WRONG!

iVillage Member
Registered: 03-27-2004
My Doctor was WRONG!
2
Fri, 02-04-2005 - 10:32pm

I am just really upset right now. I don't feel like I can trust my doctor. Since I was 15 years old I have been diagnosed with Crohn's disease. Now (at 24 years old) my doctor informed me that based on some new tests (colonoscopy) he 'believes' it is Ulcerative Colitis. I informed him I was under the impression that it was Crohn's for 9 years can it just switch??? And he said that I fall under a small percentile that is actually "undiagnosable" so it COULD be crohn's still and COULD be ulcerative colitis...but we will never know for sure which one it is.

WHAT IS that???!?!?!

I mean I have been on Pentasa for Crohn's for almost a decade now. So I could have been on the wrong medicines this whole time! I remember the days out of remission when I was on 25 pills a day. I remember the weight loss, the hair loss, the vomiting all of it. I'm scared about not knowing. I don't understand how he could have been so sure, and now not know at all and in fact, say that it will forever be indeterminate.

I am just really frustrated by this. It's like all those hospital visits were for nothing because I actually know nothing further than when I went in before. I'm sorry for ranting here but it is really the most helpless feeling I have experiences in quite some time!

Any advice would be greatly appreciated! Thank you!

Community Leader
Registered: 10-01-2002
Sat, 02-05-2005 - 2:38pm

Hi isassygirl3, and Welcome to iVillage


First NEVER ever feel sorry for ranting

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iVillage Member
Registered: 03-23-2003
Sun, 02-06-2005 - 4:26pm

Hi Sassygirl3


Welcome to the board.