New here...Dx: EGID
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| Wed, 08-02-2006 - 8:22pm |
Hello all,
I am Kerri, 28 yr old and diagnosed with Eosinophilic Gastro-Intestinal Disease after having my 16 month old. I was wondering if there was anyone on this board who is familiar with this disease. For those who don't know it is an allergic GI problem consisting of food and environmental allergies. When the allergens enter the GI tract the white cells attack the lining of your esophagis, stomach and intestines, causing swelling, pain, spasms and tissue damage. I have the colitis (severe) and gastroenteritis (moderate). Right now I am eating mostly rice cakes, peanut butter, chocolate, and a handful of veggies. I have lost 20 pounds and am now 10 lbs below my pre-pregnancy weight. I have gone through treatment with prednisone, protonix, asacol, clindium, donatol, and a few drugs that I can't even remember. For short periods of time I am ok and asymptomatic so long as I avoid gluten, dairy, fruit, onions, and certain herbs. However, lately I have been going through periods of getting very congested and then the severe colitis attacks that landed me in the hospital for a week last November. Let me tell you (and a lot of you probably already know) the prep for a colonoscopy when you are symptomatic is EXTREMELY painful, worse than both childbirth and the kidneystone I passed at 36 weeks preg. Actually the disease is similiar to childbirth in that it feels like hard labor but at the end of up to 8 hours of pushing, you don't really get a child!
If anyone has information or anything at all that I can try I will! Trust me at this point I am very desperate and the doctors are not helping.
TIA,
Kerri

Welcome Kerri!
I had one heck of a time finding much info to share with you about the condition you have. I am not personally familiar with it and wanted to read something to get a better idea. This is about all I could find online, without needing to access sites that were restricted to medical folks.
http://gut.bmjjournals.com/cgi/content/abstract/52/2/181
I will check back tomorrow...in the midst of some bad storms right now and I better shut down before lightening does it for me! LOL
CL of

<Thank you so much for trying! It is a rare (but becomming more common) disease. I did join another message board exclusively about the illness but everyone has the esophagitis and so it is of very little help to me! Please don't break your back trying to find information (or get struck by lightening!). I really appreciate your efforts. I would like to contribute to this board and maybe someone will pop in who has similiar problems. Maybe not even for advice but also for support!
Once again, Thank you so much,
Kerri
Hi again Kerri!
I guess

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