laporoscopy to find source of pain

iVillage Member
Registered: 04-07-2003
laporoscopy to find source of pain
6
Mon, 04-07-2003 - 1:19pm
Hi, I have been to every doctor within a reasonable driving distance of my hometown and I promise you I am not a hypocondriac! No one can find an explanation for my pelvic pain. I've had all possible diagnostic tests done by gyn's, urologists, and gastroentologists. They all tell me nothing is wrong with me and if I want to, I can have an "exploritory laporoscopy". Has anyone had a lap and still did not find a reason for their pain? I'm wondering if anyone has been through this before I decide whether or not to have this. Having the lap and not finding anything woudl be worse than not having it and suffering this pain the rest of my life. My pain is very very sharp on the left lower pelvic region. Sometimes I have such a sharp shooting pain, that I cannot move. Oh, by the way, the doctors also tell me I don't have enought symptoms of endometriosis to have that. I am 19 and the pain just started out of no where one day when I was not on my period. (I've never had problems with painful periods.) Also, i've been on the pill for three months and the pain is worse, rather than better and my whenever I get my period I get huge clots of I don't know what ( it doesnt look like blood- its some really thick black stuff coming out). Any one have any ideas or advice about what I should do? I really appreciate it, I don't trust the doctors-they don't seem to be taking me seriously!

Thanks a lot!
iVillage Member
Registered: 03-25-2003
Mon, 04-07-2003 - 9:40pm
I say have the lap, I just had one two weeks ago and frankly, it wasn't that bad, I mean, your under for one and b....there is the pain meds which in some cases aren't all that necessary...any way you look at it this way, it's worth finding out what the hey is really going on right?

Good Luck

Missy
iVillage Member
Registered: 04-09-2003
Wed, 04-09-2003 - 5:01am
I know it's hard to wait when you're in pain but... . I just had a lap last Jan. and I'm regretting it to some degree. I'm not saying don't have it just do research beforehand and take the time to think it through first. I didn't and now I have more questions than before the lap--the Dr. went in to look for endometriosis because of right side pain, took a lesion off my left ovary but didn't biopsy it, told me he didn't know if it was endo or not and then turned around and told me it was all in my head. Needless to say, he is no longer my GYN! There are a lot of great websites out there where you can look up information on your symptoms. Get yourself educated and take articles with you that SHOW the doctors what you suspect and why. If you seem to have real information they are more likely to listen. Some good sites are and (I'm not sure of the address but it will come up if you do a general search for it) Medline Plus. You might also try a Family Practice physician rather than a specialist--they seem to sometimes be better at finding things because they've been trained in a wider variety of areas and aren't "stuck" in thier own specialty--they can refer you to a specialist if need be. The "clots" you talk about definately don't seem normal--if all else fails, take samples of the "clots" with you next time. It might be gross but it would certainly get the Dr.'s attention and SHOW them what's happening. It is probably something simple in someone your age but I would look up as much info as you can but not wait too long to see another Dr.. There are also places where you can look up info on endo like the sites I've already mentioned and they both give places you can go for further info. if you do specific subject searches. From everything I've read it is different for everyone. You can have anything from no symptoms and no pain to extreme pain and a multitude of symptoms and everything in between. The pain also has no bearing on how extensive the endo is--extreme endo can cause no symptoms and mild endo can be very painful--or vise-versa. I hope some of this helps you with the problems you're having--wish I could help more. Best wishes and I hope you find a Dr. who will listen soon.
iVillage Member
Registered: 04-07-2003
Wed, 04-09-2003 - 1:25pm
Thanks, I agree about doing research. I have spent hours and hours online at different websites and my symptoms point to both endometriosis or irritable bowel syndrome and even interstitial cystitis or pelvic inflammatory disease. This is why no doctor can figure out what I have.One gyn actually told me I didnt' have endo. just because I didnt' have painful bowel movements. And they all have told me it is period related, when its obvious that its not. I haven't told anyone about the clots because I don't know if some degree of black stuff is normal or not and I don't want them to laugh at me since they already think I'm nuts. Before all this pain started I used to get the brown/black stuff too, just not as much as now. I can't find any info. about what that could indicate. I thought it indicated fibroids but my doctors said i'm too young for that. Do you know if a pelvic cat scan shows fibroids? i had one last week and they told me everything was normal, so does that mean I can stop worrying about it and figure that it must be just endometriosis?! I still don't get how endometriosis could just come out of the blue one day after I've been getting my period for 7 years with no problems! What do you think?
iVillage Member
Registered: 04-09-2003
Thu, 04-10-2003 - 3:58am
I truely wish I could help you more but I'm really not sure I can. What you are going through (at least in terms of the clots) is something I haven't dealt with before. Right now, as I said in my other post, I'm kind of in the same boat in being brushed off by my GYN and working on finding someone to help me find what's wrong. It's good that you are doing research. One thing I do suggest is that you find a doctor you feel reasonably comfortable with and tell them about the clots and also keep a symptom list. Both could make the difference in finding a diagnosis and give the doc the one piece of the puzzle that's missing--and NEVER give up. Sometimes you have to push when they tell you you're too young to have something or that you don't have it because one symptom is missing. One place you can go for another forum is then click on "forums and support" and then on "Womens Health". I've seen lots of postings on unusual bleeding and "clots" and they may have some answers for you. You can do a search of the archives for past questions as well as post new messages, there are Dr.'s who will (sometimes) answer your questions, and there are several women that have responded to my inquiries and had good suggestions--both on the questions and on where to find more info.. One site that was recently suggested to me was though I haven't had the chance to check it out myself--maybe you've already checked it?! As for the CT scan I don't know enough about it to say if it would show fibroids or not--sorry. Again, this is a good subject to bring up on the obgyn site--I've seen postings on all the problems you mentioned except maybe IBS. The only way to tell, at least right now, if you have endo or not is with a lap--they are working on new, less invasive tests, but who knows how long it will take for them to become available. You're the only one, I'm afraid, who can decide if that route is right for you--just be sure you ask lots of questions (and get answers!) as to how much they know about endo and find the most experienced and knowledgable person you can BEFORE you agree to surgery--if that's what you decide to do. Another site I've found that has info on how to talk to your doctor, questions you can ask, as well as info on keeping track of your symptoms is . It's geared toward finding out about endo but many of the questions and info on symptom diaries could be useful for other problems too--with a little tweeking. Well, I've rambled on long enough. I hope I've been at least some help and that the websites give you some answers--wish I knew more. Take care and, like I said, don't give up. It may take a while but you WILL find what you need. Let me know how things go and best wishes on your jouney!
iVillage Member
Registered: 04-07-2003
Fri, 04-11-2003 - 2:24pm
wow thanks so much for all the websites! So hOw did your pain start and how long did you wait before having your lap? Was it a continous pain? Are you still having it after taking the biopsy? What have your new doctors said about it? I had been keeping a pain journal and it was soo confusing with absolutely no patterns that I just stopped doing it. ONe day I would have pain only in the morning and another day it would be only at night. IT really wasn't helpful. Also, everyday, it seems like the type of pain changes. Like sometimes I know its definetly coming from an ovary or something. Other times, like last night it definetly feels like my digestive system acting up. Then as soon as I start eating it feels better for abotu an hour. How did you find a good doctor to have your lap? I have been to the rudest doctors. The one who told me i can't have endo b/c i didn't have painful bowel movements was the one who put me on birth control pills. I had absolutely no clue how the things worked, and she just walked out without explaining anything and told me to come back in three months. She handed me this two page report about the pills to sign and the nurse was rushing me to read it and sign it. Also, before seeing her I had an IVP to look in my bladder. Well, on the results, the radiologist said my uterus was not in the right place (it was antiverted and pressing against my bladder)so I told this to the gynecologisrt and she said it was normal and wouldn't have caused the pain. The next doctor i went to was a little better. she actually offereed possible explanations of my pain; this was the first time anyone had done this for me. She said it could be bladder, bowel, period related, or a nerve problem. And said it doesn't look like endometriosis.But I am still not too confident abotu allowing her to do the surgery because she looks young, only in her 30's and I don't know how much experience she would have. She also mentioned several times that she does not like to do this on young people and that I needed to make sure this was not IBS before deciding on it. I can't get any help from the gastroentolgist and unfortunately he is the only gi doctor in my area. I am running out of money with all of this shuffling back and forth b/t doctors and I know you said i shouldn't give up but I really can't handle the emotional stress everytime I get back from yet another bad experience at the doctor. I am too afraid to push because I don't want them to get pissed at me and then give me bad health care b/c they think I"m being a whiny bitch.Well I will go to those websites you recommended. Thanks alot again!
iVillage Member
Registered: 04-09-2003
Sat, 04-12-2003 - 6:10pm
You are welcome for the websites--hope they help. All I can suggest is if you felt the one doctor was giving you more info and seriously trying to help, go with it. Sometimes the younger doctors know more about newer developements in medicine since they haven't been out of med school as long and they haven't gotten stuck in a treatment rut yet. Sometimes, at least in my opinion (though this definately doesn't apply in all cases) the older doctors have more responsibilities and more patients and don't have as much time to keep up with new developements. My new doc is probably in his mid 30's but I had one several years ago who was probably in his late 50's--I like both and would have stayed with the older one but he only works at the local university health service and I'm not a student anymore. It's hard to say with age--you have to go with how they treat you and whether you feel reasonably confident that they know their stuff. If that Dr. is reluctant to do surgery but hasn't said no then she's probably trying to find out as much as possible first and save you the trauma and expense of surgery--this is a good thing. My lap ran me about $7500 with the surgery center, anesthesiologist and gyn bills, not to mention the discomfort (sometimes outright pain) and time off work for recovery (about a week since I have a physical job). Don't jump into surgery without weighing the risks and exhausting your other options first--it may very well turn out that your problem is something surgery wouldn't help. There are all kinds of risks with surgery that NO doc, even the best, can predict--being young, you may do great or you may not. You could be back on your feet in a couple of days--you may not. If you can, and you feel pretty comfortable with her, give the one doc a chance. Tell her how you feel about the gastroenterologist--she might have some suggestions or other options--and listen to what she suggests. Tell her your concerns and listen to what she has to say--she may just surprise you. I'm going on what you have told me understand, so I don't know if it's good advice or not but, she's closer to your age than an older doc and may understand you and your concerns much better. Try not to get caught up in the symptoms too much and convince yourself it's a certain problem and no one is seeing it--I know this from past (and current) experience--sometimes things like a pinched nerve in your back or neck can cause some really weird and seemingly unrelated symptoms like intestinal problems and abdominal pain. Well, enough rambling. Hope the websites help and whatever you decide works out for the best--good luck and best wishes.