Frustratred beyond Belief
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Frustratred beyond Belief
| Fri, 08-06-2004 - 3:36pm |
Hello all,
This is axsai(Ona). Guess what my TSH is now up to 395 yes that is right 395. Now to get to the real point my new endo has already given up on me because she has never dealt with someone on injectable synthroid has suggested i see someone at UC. I am about just ready to do nothing cause I could care less anymore and just deal with all the other things like getting blackout spells and headaches more frequently.
If anyone has any idea what I should do? I am welcome for suggestions now mind you I have been to about every enod in cinti and northen ky and the cleveland clinic and just get the runaround because my body doesnt act the way it should.
This is axsai(Ona). Guess what my TSH is now up to 395 yes that is right 395. Now to get to the real point my new endo has already given up on me because she has never dealt with someone on injectable synthroid has suggested i see someone at UC. I am about just ready to do nothing cause I could care less anymore and just deal with all the other things like getting blackout spells and headaches more frequently.
If anyone has any idea what I should do? I am welcome for suggestions now mind you I have been to about every enod in cinti and northen ky and the cleveland clinic and just get the runaround because my body doesnt act the way it should.
axsai

Axsai
http://pituitary.mgh.harvard.edu/guest/guest.htm
Here's a listing of their endocrinologists:
Endocrinology:
Beverly M.K. Biller, M.D.
BBiller@partners.org
Physician Profile
PPD Office Info
Harvard Curriculum Vitae
Laurence Katznelson, M.D. LKatznelson1@partners.org
Physician Profile
PPD Office Info
Harvard Curriculum Vitae
Karen K. Miller, M.D KKMiller@partners.org
Physician Profile
PPD Office Info
Harvard Curriculum Vitae
Here is the site that will directly link you with the endocrine department:
http://www.massgeneral.org/depts/endocrinedivision/endocrine_home.htm
Here's something from John Hopkins, its a message board for people with pituitary issues, some with hypothyroid.
http://www.brain-tumor.com/discussion-board/thread.cfm?threadid=20&messages=482
HERE'S SOMETHING SPECIFICALLY ON THYROID!
http://www.hsc.missouri.edu/~daveg/thyroid/thy_dis.html
Seconday Hypothyroid (Hypopituitarism)
Secondary hypothyroidism is defined as the failure of the thyroid gland due to the inadequate production of Thyroid Stimulating Hormone (TSH). This can occur due to primary failure of the pituitary or as the result of hypothalamic dysfunction (tertiary hypothyroidism). Pituitary failure can result from destruction by pituitary and non-pituitary tumors, head trauma, radiation, postpartum infarction (Sheehan’s syndrome) or unknown causes (idiopathic). Generally the symptoms of hypothyroidism are less severe than in primary hypothyroidism and are often complicated by deficiencies of other pituitary hormones, as well as the mass effects of the intracranial tumor. Patients with secondary hypothyroidism must be evaluated for pituitary tumors and other hormone deficiencies.
This is all I could come up with right now. I will be thinking about your Ona.
A TSH-secreting tumor secretes too much thyroid stimulating hormone, which then causes the thyroid gland to make too much thyroid hormone (hyperthyroidism). These tumors are very rare.
Symptoms of a TSH-secreting tumor include:
Heart palpitations
Fast heart beat
Irregular menstrual cycle
Headaches
Visual disturbances
Difficulty sleeping
More frequent bowel movements
Inability to tolerate heat
Excessive sweating
Fatigue
Weight loss
Nervousness
Treatment for a TSH-secreting tumor:
The first treatment is usually transsphenoidal microsurgery. Unless the tumor is large, surgery alone can typically provide a complete cure. If so, you will need a long follow-up period with your doctor to be sure the treatment has worked.
If surgery doesn't remove the whole tumor, octreotide is an effective medication. Radiation therapy also may be prescribed. The radiation will destroy the remaining tumor, but the process is slow. Patients also may need additional medical therapy to lower TSH levels.
Since your tsh levels are so high and you have the tumor, is it possible that this is what's causing it? But you're hypothyroid, right? Not hyper? I just wonder if your test results are thrown off by something like this, perhaps? What do you think? Cathy
Ona
Axsai