SO FRUSTRATED I just wanna CRY!

iVillage Member
Registered: 11-16-2004
SO FRUSTRATED I just wanna CRY!
4
Tue, 11-16-2004 - 9:24pm

And cry I have. I just feel like none of the doctors want to listen to what I have to say, they tell me my tests are normal and won't change my prescripition at all,(synthroid .112mcg two a day) they say it is already high enough. I feel I am not being believed like I m making it all up. One doctor even told me I wont give a higher dose just for you to use them as a weight lose pill ??? But yet within the last year I have started getting migraines at least 2 a month, my legs,arms, fingers go to sleep very easily, I ll have to wake them up before I ll be able to finish typing this.
Within the last 6 months gained even MORE WEIGHT though been dieting and exercising more then ever before. And brain fog well it's more then fog at least fog lifts when the morning sun comes up mine continues on all day long. Just changed doctors AGAIN, after spending more money on the same tests (grrr!) Only to once more hear them say WELL YOUR TESTS ARE ALL NORMAL, SO WE'LL JUST KEEP YOU ON THE SAME MEDICATION YOU VE BEEN ON! AAAHHH NOW I m begining to think it is just me, and starting to become REALLY DEPRESSED !Not sure where to go or what to do from here?? I feel like a lost sheep and can't find my way back to anywhere. I ONLY WANT TO FEEL NORMAL LIKE EVERYONE ELSE that doesn't have HYPO or at least come close to it. That doesn't seem to much to ask but I GUESS IT MUST BE BECAUSE no doctor seems to want to let me get there. ANY SUGGESTIONS FROM ANYONE. ANY ONE KNOW OF A GOOD DOCTOR IN THE LAS VEGAS AREA? Ive checked the TOP DOCTORS LIST and the ones I can get ahold of are not taking any new patients the others either have gone to new clinic or left the area because are no longer at given phone number listed?
This is my first time visiting this message board! Let me first say THANK-YOU I have been reading the posts for the last two hours I d say. And feel WOW I AM NOT ALONE! Like I was begining to feel!!

Thanks for letting me cry,
Jamie

iVillage Member
Registered: 06-22-2004
Tue, 11-16-2004 - 10:16pm


Hi:

I'm so sorry this is happening to you. But, keep the faith. I know how hard it is... I have been there! My post about 'awesome new endo' came after 8 months of feeling totally ignored. It was like everyone at my Drs office kept insisting the sky is brown, but when I'd get really down I'd come post on this board and my friends here would remind me that they know the sky is really blue!

As a suggestion, you might try calling your OBGYN. I found that mine was more sensitive to women and hormones, and that since fertility is an issue with hypo patients, she was very willing to help me find a good endo. I don't know whether this is relevant to you, but if you are even remotely thinking along these lines then this is a good opportunity to get someone's attention. (I suffered two miscarriages, so I was able to express my concern about future miscarriages if my hypo symptoms wouldn't go away).

The best of luck to you. Come here and cry, vent, whine, SCREAM, whenever you need to , OK?

Dee.

iVillage Member
Registered: 11-09-2001
Tue, 11-16-2004 - 11:03pm
Hi Jamie - I don't have time to give you the anwwer you a long answer right now because it's late but I can get back to you tomorrow. In the meantime, you are not alone!!! It's very discouraging, I know, to have to fight for yourself when you're feeling so low. And you do get the feeling that it's all in your head!! But it's not!! Not at all. The key really is to keep switching docs as often as you have to in order to find someone to take you seriously. Ask around for a good doctor; someone you know might have one!! Take out the phone book and just start calling endos, explaining your situation - but not too dramatically!! :) You have to be reserved and careful or they'll think you're trouble and won't take you on! I wish I were kidding. One of my former docs receptionists didn't like me and wouldn't give her my messages!! Can you imagine? I'll get back to you tomorrow with some more ideas!! I'm so glad that you found us. I think knowing that you're not crazy and yuo're not alone is half the battle!! Hugs, Cathy :)
iVillage Member
Registered: 03-31-2003
Fri, 11-19-2004 - 11:44am

Hi Jamie...

Just wanted to say that you are SO NOT alone! I am off work (yet again) today because I just dont have the energy to lift myself out of bed. Yesterday the brain fog was so bad I almost didnt remember driving home from work. I'm too am SO frustrated.

I too feel that no one is listening, I feel as though it must be all in my head. But you know, when I really think about it I's say to myself... well if it IS all in my head... then why can't I "WILL" it all away. That leads me to conclude, no! Its NOT in our heads and its truely terrifying.

Unfortunately sweetie, I dont have the answers you need... I'm in the same boat. (and going no where fast!)

I just had my family doc repeat a pile of bloodwork.. and now am waiting for my return appt to review it.. but having gone through all this with him already, I'm expecting the same response as you got from your doc... "everything is within normal range"... it must be STRESS!

I think Dee had a great idea in trying to see your gyn. Thats my next step.

I also think too that we'd do best at this point to follow Cathy;s advise to keep searching... someone out there HAS to be able to help!

In the meantime, take care, and please remember you are not in this alone. Hypo is one of THE most undiagnosed illnesses in North America right now. Keep posting, hopefully together we'll find the answers we not only NEED but DESERVE!

Hang in there kiddo! Love, Marley

iVillage Member
Registered: 11-16-2004
Fri, 11-19-2004 - 12:15pm

Jaimie,

My post is the one below yours. You can read my story or horror story of visiting my first Endo doctor yesterday. I know what your saying, agree with what your feeling too. If your self paying, then go to another Endo. Get references from other patients if you can first. I may not be able to see another Endo as it will be a 3rd opinion and they kinda frown on that. But you keep plugging away. For Me today it is just one giant cry fest. So don't feel you are alone. You are not. Please feel better today. I don't want you to be upset or cry.

Sandy