HypoT and tongue swelling

iVillage Member
Registered: 12-04-1999
HypoT and tongue swelling
7
Sun, 12-26-2004 - 10:11pm

Greetings all:


I am currenlty under the care of a reproductive endocrinologist, who lowered my thyroid meds as she thought I was taking too much ... bad idea as I went deeper into hypothyroidism. 


I'm back on a higher dosage, but I continue to experience tongue swelling (scalloping /teeth marks of the tongue).  This can be due to hypothyrodism, but since I'm on a higher dosage, I thought it would go away.


So I've been doing research on tongue swelling on the internet and came across things like B12 deficiency and a message board that discussed tongue swelling and the cause could be due to "deposits of muccopolysacharids that hypos are prone to".  I think this is some kind of enzyme deficiency.  I found the info at: http://www.healthboards.com/ubb/Forum118/HTML/003450.html


Does anyone have tongue swelling as a symptom of HypoT and is there a way to control it (I fine it most annoying).  Has B12 helped or taking a digestive enzyme relieve swelling? 


My RE is aware of my problem and she just changes my meds again and so won't be able to take a blood test until mid-January to check my levels.


Thanks much for any insight :-D


Monica.

iVillage Member
Registered: 11-09-2001
Sun, 12-26-2004 - 11:17pm
Hi Monica - I get this at night!! I never linked it to my hypo or to my tongue swelling! I just thought I was really losing my mind or something and wasn't even going to worry about it. It doesn't happen often but when it does, it really hurts. I used to take a B12 supplement but stopped a while ago. I don't know if I experienced it when I took the B12 or not but this is something I'll look into. I'll let you know if I find anything else. I'm just amazed!!! LOL! Cathy :)
iVillage Member
Registered: 12-04-1999
Mon, 12-27-2004 - 11:21am

Apparently, tongue swelling is quite common in hypo.

iVillage Member
Registered: 11-09-2001
Mon, 12-27-2004 - 10:02pm
I think "normal" is about what you can bear at this point! LOL! I'll let you know when I find something. I didn't last night and today, I've been wrestling with trying to get my new ipod mini to work. I got it for Christmas and it's been nothing but trouble trying to get the thing up and running. But I'll post whatever I find for you. I'm curious, too, now that I know this is something "real" and not just another annoying thing I planned to ignore! :) Cathy
iVillage Member
Registered: 12-04-1999
Mon, 12-27-2004 - 11:36pm

Well, I finally found the web site that the gal was referring to in the message board chat:


http://www.merck.com/mrkshared/mmanual/section2/chapter8/8e.jsp


There are some mighty big words in there that'll need to look up ;-)


Monica.

iVillage Member
Registered: 08-25-2004
Tue, 12-28-2004 - 9:53am
I've experienced slight tongue swelling, like what you said, my tongue not quite fitting in my mouth properly. I thought it was all in my mind! :)
Thanks for the input!
Carole
iVillage Member
Registered: 11-09-2001
Tue, 12-28-2004 - 10:35am

Hi Monica - thanks for the link. I'll check it out later today. Here is a site that I found interesting. Not that I think this condition is the cause of our tongue swelling, because everything I've seen so far lists it as a symptom of hypo but ... it has some interesting links with hypothyroidism, like being an accumulation of antibodys in the system, links with diabetes, links with being an autoimmune condition. Check it out when you have a chance and let me know what you think: http://www.usadrug.com/IMCAccess/ConsConditions/Amyloidosiscc.shtml

Cathy :)

iVillage Member
Registered: 12-04-1999
Tue, 12-28-2004 - 12:11pm

Hi Cathy:


Well that's a mighty scary article !!!