I have no choice left!

iVillage Member
Registered: 01-16-2006
I have no choice left!
4
Thu, 01-26-2006 - 10:25pm

I'm going to make this as short as possible.

My first endo (as some of you know) Really messed me up. I didn't know how badly until today.

At first my new endo asked me what dr. I was leaving and why? I told him her name........and called her one as well and he said..."Oh come on..I know her and she is a wonderful woman". I said oh yeah, she's so sweet but, not helping me at all......

He began to look over all of my records, as far back as May (when I began to see my old endo)...
He stated to me that I have both Graves and Hashi's......and that my levels have been somewhat masked by all of the meds I have been taken and could not tell how serious I have become without antibodies testing.
He then proceded to read my reports from my hospitalization in June....

Now, In the beginning of June, I began to feel very bad. Vomited for 15 days and severe shaking....anyway..ended up in the hospital in very bad shape.
He began to shake his head and say, "I don't understand this...You were put on tapazol"? Yes, I stated and had severe diarrhea so I stopped taking it. (I was on it for 3 days).....
He said, "SO they put you on PTU?", Yes, I said.
and then he began to ask who some Dr. was that was on the report...
I said he was a liver specialits called in to check my report.

He then asked me If I knew why? A specialist was called in and I said, no..........I was so sick, I don't remember much.......He said....
"well, I'm going to tell you why......You are not only allergic to tapazol, IT ALMOST KILLED YOU, and you have no Idea how dangerously close your levels were to fatal, do you?."

Stating that only two more days on tapazol would have definately killed me and thank GOD you stopped taking it dispite your dr's advise to continue.

Now, He said that PTU should have NEVER,EVER been an option for me as It can cause Irreversable damage to the liver in someone with the levels of emzimes I was releasing...
WHY DID THE DR'S NOT CHECK THE LABS I JUST HAD DONE IN THE HOSPITAL! He could see the results 8 months later.
No other options were ever discussed.....
He ordered STAT blood work on my liver and had the resutls back within hours.
I am in serious trouble. MY liver is failing and my levels returning to where they were in June, and I can no longer continue on PTU as it is the cause of my Liver problem.
I asked him to do some more labs on me and he said it is DANGEROUSLY passed the labs phase and I am in NEED OF MY THYROID REMOVED or RAI, IMMEDIATELY!

My liver is now failing and I must focus on that. He scheduled me for my Uptake scan on Monday and My RAI to follow.

I was so happy to get some answers finally but, it's now hitting home just how sick I am.

I am thankful to the Dr. for seeing me so quickly as My original apt. was for Feb. 16th. He did state to me that If I have stayed on the PTU till then, I would most likely DIE!

My liver is so poisoned and does not understand why my old endo did not follow my liver progress. THE ANSWERS WERE RIGHT IN FRONT OF HER!

I can say he changed his tune about her VERY QUICKLY!

And all my old Endo had to say at last weeks phone call was...Oh, just keep taking your PTU and I'll see you in six weeks.

I have NEVER been so happy and so SCARED in my life as I am at this moment.
I am so scared and have no choice and I don't know what to do or say or feel.....
I was so happy to FINALLY find someone to help me and now, I have this Liver hurdle to take on. Oh, I'm so Scared right now. I feel so alone.

iVillage Member
Registered: 10-27-2004
Fri, 01-27-2006 - 10:57am

Hi lil! Wow, sounds like a mess.

The best way to forget all your troubles is to wear tight shoes...
iVillage Member
Registered: 01-16-2006
Fri, 01-27-2006 - 11:31am

April thank you so much for that. It really helped calm me down some.
And for your e-mail.

I don't have the antibodies test results yet, I will have them this afternoon. He did say that I needed to get off the meds immediately as they were causing a great increase in my liver emzimes.

Also, he said that he didn't want me off the meds too long without doing something and acutally recommended the RAI over the surgery......said the surgery for the removal of the entire thyroid was very risky.
nerve endings, the other glands, small arteries...etc.
He did stress that I need to make a decision NOW. It was that important. That after 8 months the meds are doing NOTHING for me.

Only making me sicker.

Again, I get more and more confused every day.

Thanks.

Lil

iVillage Member
Registered: 12-09-2004
Mon, 02-06-2006 - 9:33am
I work in health regulatory and after reading your post, you should consider reporting your old endo to the State Board of Medicine. If you do a little online research in the website for your state, you should be able to find a way to report a doctor with "performance issues". Sounds like that doctor needs a wake up call, and a Board complaint might be what she needs.
iVillage Member
Registered: 04-16-2004
Mon, 02-06-2006 - 7:31pm
Hi, I read your posts and I have to say Thank God you found this new doctor. It sounds like you have a lot of information to absorb, and all this new information is overwhelming.
I don't have much advice on what you should or shouldn't do when it comes to the RAI or the surgery, other than do A LOT of research. Definately ask your doctor any and all questions and the reasoning why behind his answers. And if your not satisfied, tell him. You should be given full disclosure at this point. (In my opinion.) There is truth to the fact that there could be problems with the thyroid surgery. A friend of mine had hers removed and there was damage done to her parathyroid glands, behind the thyroid, and she had dangerously low levels of calcium--much like your problems with your liver, where her family was basically told she could have died.
I wish you the best, and definately peace and a clear mind at this time. Please keep us updated on your situation and your decisions. You will definately be in my thoughts and prayers.
Sincerely , Lisa