Congenital Hypothyroidism
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Congenital Hypothyroidism
| Wed, 04-19-2006 - 5:17pm |
Just found this board and wondered if there are any other moms out there with kids that have congenital hypotyroidism (CH)? DD was diagnosed and started Synthroid at 6 days old. She is now 8 mos and doing very well, however I still stress when she sleeps more than normal, eats less than normal, poops less than normal, etc. We've also found out we're expecting #3, we've been told that it's not hereditary and the chances of this baby having CH are very slim, but I still worry. KWIM?


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Hi Danielle.
Our doctor told us that it can be hereditary.
Christine
Mommy to Zach, Grayson, & Canon
Hey Christine -
I've been thinking about you.
Lynette,
Hey!
Christine
Mommy to Zach, Grayson, & Canon
My daughter also has congenital hypothyroidism they told us when she was a week old her TSH was 479, we got a call saying we need to get our baby in because she is very sick. I was in shock because I thought I just had a really quiet good sleeper. She was started on 50mcg of synthroid then 44mcg, then 37.5 and they just cannot get it under control, its if we go to 25 then her numbers jump. That has been the frusturating part for me, and before I found this board today I have been searching for other moms to talk to about this.
We were told that since her numbers were so incredibly high that her thyroid probably just never developed, I asked if there was a way we could test to know for sure, but her specialist didn't want to put her through that since the results would not effect her treatment any way. I just can't help but wonder why it just does not get under control either her TSH is too high or to low, thats what I find frusturating. She is definately growing good, so thats a sign for me I guess, I just have so many unanswered questions and want to know what to expect in the long run.
Im really glad I found this thread.
I'm glad you found this thread also!
Hi just found this website!!
I am
My son Jesse who is about to be 3 years old is on 75mcg also, but has been since the day he was diagnosed.
He is also very articulate, speaking in full sentences and counting to 17... though any information I find on the internet is always bad. For instance, last week I found some article that says children with CH could have hearing loss even if treated. I am just so worried because anywhere I look, or even with his specialist I can never get a straight answer on any problems in the long run of his condition. I have found another group on Yahoo! that is strictly for parents of children with CH, and hopefully parents can become well informed of our child's condition and how to handle it.
Hi thanks for replying!
We have seen a couple of doctors over the last 4 years but we now see a doctor who specialises in this type of condition. He has really reassured us that there will be no difference with Sam and any other child .His actual words were "if there was a condition to have its this one because as soon as you take the thyroxine your better".
We were at Sam's 6 month check up on Thursday and it's now so routine
Pretty much at
I'm on line ordering xmas presents so got your email.
I hope it makes you feel better to know our doctor told us that a child diagnosed at birth has no problems in later life it is children who go undiagnosed for a while that suffer.
I have a friend who's daughters thyroid stopped working when she was 18 months old and went
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