Chasing the Thyroid Level (2years!)
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| Sat, 09-16-2006 - 10:38am |
I would be very interested if anybody can give input into "The Mystery of the Dropping Thyroid Levels".
My daughter has Hypothalamic-Pituitary Axis Hypothyroidsm. Her actual Thyroid gland is fine, but her Pituitary makes too little TSH, possibly because the Hypothalamus, which regulates the Pituitary's secretion of TSH is not telling it to make enough.
For OVER two years now we raise the Levoxyl and she feels better briefly, then the Pituitary makes even less TSH, and the thyroid levels fall again.
Her doctor says it is like a thermostat that is set too low. So he sent her to an endocrinologist that is a Pituitary specialist. We waited months to get that appointment.
The new specialist had not seen anything like this, but at least was open about it and said she would research it and also talk with another endocrinologist in another state who may know...
An idea that arose from one endocrinologist is to just start over with Synthroid and let it dissolve sublingually - that somehow it might affect her system entirely differently than the levoxyl.
But we are still months away from this doctor making a decision and a change being made in her meds... which means that my daughter will be back at square one... her hypothyroid symptoms are already coming back... it is not a pretty sight and will just get worse.
Anyway it also means I have plenty of time to ask the collective brain power on the Internet for information. I've looked before and have not yet found information precisely about this.
Help?
-Naomi


Hi Naomi,
That sounds like a very complicated health situation for your daughter.