Son born with lingual thyroid. New here

iVillage Member
Registered: 01-08-2005
Son born with lingual thyroid. New here
4
Fri, 03-02-2007 - 4:07pm

Hi there, I just found this board, and am very thankful.  I have a 17 m old son that was born with a linual thyroid.  His thyroid didn't develop fully in gestation. ( 11th - 12th week of gestation ).  The specialist told us that sometimes this just happens.  He is doing very well on synthroid, but we are just trying a lower dose, and  having is bld checked next week.  I'm pregnant again, and due in November.  I can't wait to talk to the specialist again to confirm that there isn't anything I can do to help prevent this happening again.  The doc did reassure me that this wasn't something that I could do or not do to change it, but I'm still curious to know what she will say.  Does anyone else have more than one child with thyroid problems... congenital hypothyroidism?


Also, for those of you with children that were born with hypothyroidism, how are they doing today? How old are they, and have you had any problems arrise?  Thanks so much for your insite, and I wish you all well. 


 

Lisa S.  

Lisa S.  

Avatar for cl_calley7
iVillage Member
Registered: 03-20-2003
Fri, 03-02-2007 - 4:36pm

Hi Lisa,


Welcome to our board.


I wish I had answers to your questions but I have not dealt with any children with thyroid problems.

 

Calley7

iVillage Member
Registered: 01-08-2005
Sat, 03-03-2007 - 12:50am

Hi there Calley7, thanks for your message.

Lisa S.  

iVillage Member
Registered: 04-19-2006
Thu, 03-15-2007 - 12:36am

Hi Lisa!

Lynette

  Lilypie 1st Birthday Ticker

iVillage Member
Registered: 07-07-2007
Sat, 07-07-2007 - 11:06pm
Hi There!
My son was also born with a ligual or eptopic thyroid. He is 8, almost 9 and this was discovered a week before his 8th birthday. This is a genetic fluke. We also have a daughter who is 11 that doesn't have this problem. We have seen many specialist and have a team of specialists now. We first noticed the gland at a pea size and it is now about an inch and a half in diameter. He has been on synthroid since December and it is regulating the hormones but the gland is still active and the doctors are trying to supress it. Our son's problem is unique in that he has no other gland tissue in his throat or in the "normal" spot where the thyroid should grow. Right now, our options are radioactive iodine or surgery. Surgery is dangerous as the gland is large and embedded into his tongue. We have been put on hold until September.
What type of specialists is your son seeing? Have they done a CT scan and MRI? You are lucky to have found this so early. It is much easier to deal with at a smaller size.