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|Sat, 09-04-2010 - 3:12am|
I hope you are all well. I thought I would post a little about Mack since I guess I need to talk about it.
Mackenzie has been diagnosed with mild CP and is doing well. She is walking all over the place but is very clumsy and has a hard time keeping herself up for long. She also has some interesting Sensory Processing issues which have really begun to affect her and how she relates to us and others.
We have been in the same daycare since 2007 with Fiona and have loved it. We were asked last week to find other arrangements for Mack because of her sensory difficulties. We were not surprised really but were hoping we could get through it. We have been waiting for a sensory OT to come from Oahu to help us since July. Luckily I got a call this week and she is coming on the 22nd of this month. We have decided to hire a nanny for Mack so that she can stay at home and in a more appropriate environment for her needs. My mom will watch her 2 days a week and take her to a traveling pre-school and the nanny will come to our home for 3 days (at twice the price of what we were paying at daycare!)
So, things have been tough here. She has pulled out most of the hair on both sides of her head. We are reading a ton and searching out any help we can find for her. Easter Seals is expecting her to qualify for the special education preschool (which is at my school) next October when she turns 3. If we can just get through the next year of daycare we will then be in the state system and get OT services through school.
Anyway...thanks for reading. Our journey has been very different than I had expected but also very full of love and support. DH and I are working together on this and have begun a workout program together which has helped us a lot. Fiona is suffering a bit and is seeing a counselor to help her with it all. We'll get through it. We always do.
Hugs to you all and to your babies.