PLEASE!!! any help with meds...please

iVillage Member
Registered: 01-06-2005
PLEASE!!! any help with meds...please
36
Fri, 06-18-2010 - 10:28am

Hi all,


okay they messed up her meds again..

Catherine.....

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iVillage Member
Registered: 03-28-2003
Tue, 06-22-2010 - 12:53am

I am so sorry to hear you're dealing with this. Is there any doctor you are able to communicate with or someone higher up than the doctor's that aren't helping you to shake some sense in to them to get them to help you!


Also, does your area have a social service or health department office that can offer assistance or even a support group where you can find out more answers. I know my area has support groups for caregivers dealing with dementia patients that has been very beneficial for a woman in my church whose husband has alzheimers.


Your profile says you're in Northern DE, so if you're close to Philadelphia there might be resources there, too. I know Johns Hopkins has a wonderful Parkinson's Support group, too, but that may be too far for you.


http://www.apdaparkinson.org/userND/InfoReferal.asp


http://www.parkinson.org/Search-Pages/Search.aspx?pSearchOpt=Local


lots of thoughts and prayers headed your way. hope you can get some answers soon from her doctors.




iVillage Member
Registered: 01-06-2005
Tue, 06-22-2010 - 10:07am

even if it exists..

Catherine.....
iVillage Member
Registered: 04-28-2003
Tue, 06-22-2010 - 10:47am
i know when my mom and dad where not doing great
iVillage Member
Registered: 03-28-2003
Tue, 06-22-2010 - 12:43pm

Gail's Right!


You should talk to her doctor's about switching her to Parcopa.


Parcopa®



iVillage Member
Registered: 01-06-2005
Wed, 06-23-2010 - 3:43pm

Hi Gail..

Catherine.....
iVillage Member
Registered: 04-28-2003
Sun, 06-27-2010 - 10:52am
i wish there was something else i could
iVillage Member
Registered: 03-28-2003
Mon, 06-28-2010 - 9:55am

As I read your post and your mention of her twisted foot and curled up hand it sounds like DYSTONIA to me, which can be another problem a person with Parkinson's will face when undermedicated. Perhaps further proof she's not getting enough!


(((hugs))))




iVillage Member
Registered: 01-06-2005
Wed, 07-07-2010 - 3:50pm

yes I brought the dystonia ..

Catherine.....
iVillage Member
Registered: 03-28-2003
Sat, 07-10-2010 - 12:28am

I am so sorry to hear that she is having to suffer so and how frustrating it's been for you to get through to those who are helping to care for her. You and your family continue to be in my thoughts & prayers and I hope



iVillage Member
Registered: 01-06-2005
Mon, 07-12-2010 - 10:12am

well last week they brought in a psychiatrist

Catherine.....

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