My week........
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My week........
| Mon, 02-28-2005 - 11:43am |
I will start by saying hi and I have missed all of you more than you will ever imagine and more than I probably should have. Ok, Friday morning I took Jeremy to school then went to the clinic. This is a county hospital clinic so I expected it to take between 4 and 10 hours to get done and home. It really only took me saying that I couldnt see out of my right eye and they were seeing me within an hour. I went in, told my symptoms and they (3 med students) checked me at seperate times and had me do some stupid human tricks and had their guess. then I saw a real dr and was told I was gonna have a CT Scan. This was about 5 hours after I had been there. I waited in the clinic...... then Brandi had to go get Jer from school and take him to her mom's. she came back and we waited several more hours and they took out my port (like and IV but with an attachment that they can give meds and take blood from). 5 mins after they told me I was being admitted since they couldnt get me a ct scan till early AM... I went to my room after 15 hours of waiting in this teeny tiny room with Brandi and I had a 100 y/o roomate and they told me that Brandi had to leave. I cried all night. I havent been away from her at night in over 5 years. Then they wake me up taking blood and putting the port back in and I had a migrane and threw up in the waiting room for the ct scan at 4:30 AM. The ct scan came back negative and they sent me for a MRI and more blood tests. Later that day I was told I do have MS and I was to be put on a high dose of steroids for 5 days and i had to stay till friday. They sent me for another MRI for my spine and neck (the first was the head). The neuroligist had a hard time believing I was walking. He said i had so much Placqes (sp) on my brain that I shouldnt be able to walk. Then I had to have a spinal tap to see if there was infection in my spinal fluid and to see how it will progress and how bad it really is and all that but I wont have those results for a few weeks.
** Then to top off the whole week, Wednesday I called Brandi to make sure she was ok getting the kids up and off to school and give her my love and all and she was kinda edgy. I didnt understand but she wanted to get off the phone. I did thinking she was stressed with the kids (she hasnt even had them both by herself before) so I didnt think much about it. about 20 mins after Jer would have been at school and she was to be at work she walked in my room. I was suprised and happy to see her. I asked "what are you doing here....." She told me that my dad hung himself the day before and died. I had just talked to him the day before and told him what was going on and we joked about him being my roomate instead of that woman and him getting his hernia fixed and getting all his ailments fixed.... we had a good conversation but he did get off the phone weired. So I got out of the hospital thursday and had my kids thurs night and friday night and went to my dads house (where I grew up in East TX) we looked throug his "life" and stayed the night and the funeral was yesterday. I hate that when someone dies all everyone thinks about is what they want out of it. I have had the hardest week of my life and all people can say is can I have...... or this was mine.... vultures! I got back from the funeral and there were 20 or so people on the porch, 10 or so in the living room and his girlfriend that didnt even know till saturday was in his room. alot of them were going through his personal things and it really pissed me off! I made most leave but some things my brother wanted are missing. we then smoked to my dad- I dont drink but I have occasionally smoked a J with my daddy so in memory me, brandi, my aunt, uncle and a few of his close friends I knew passed one around for him. BTW, the doc told me that was one treatment of some symptoms but they cant offically prescribe but he wanted me to know. But I started my prescribed treatment thursday (Avonex- an injection in the hip) and it made me feel like poo-poo thursday and friday and most saturday. I could barely move I hurt so bad. I give myself the shot every thursday for the rest of my life.......
well, this has turned into a book so I will let yall go. If you have any questions, I will answer them. I want people to ask in case I forget to ask something myself. so please ask me- even about my dad. so fire away...i want to talk about it and I feel like I am talking too much here at home... I missed you girls so bad, mandi
** Then to top off the whole week, Wednesday I called Brandi to make sure she was ok getting the kids up and off to school and give her my love and all and she was kinda edgy. I didnt understand but she wanted to get off the phone. I did thinking she was stressed with the kids (she hasnt even had them both by herself before) so I didnt think much about it. about 20 mins after Jer would have been at school and she was to be at work she walked in my room. I was suprised and happy to see her. I asked "what are you doing here....." She told me that my dad hung himself the day before and died. I had just talked to him the day before and told him what was going on and we joked about him being my roomate instead of that woman and him getting his hernia fixed and getting all his ailments fixed.... we had a good conversation but he did get off the phone weired. So I got out of the hospital thursday and had my kids thurs night and friday night and went to my dads house (where I grew up in East TX) we looked throug his "life" and stayed the night and the funeral was yesterday. I hate that when someone dies all everyone thinks about is what they want out of it. I have had the hardest week of my life and all people can say is can I have...... or this was mine.... vultures! I got back from the funeral and there were 20 or so people on the porch, 10 or so in the living room and his girlfriend that didnt even know till saturday was in his room. alot of them were going through his personal things and it really pissed me off! I made most leave but some things my brother wanted are missing. we then smoked to my dad- I dont drink but I have occasionally smoked a J with my daddy so in memory me, brandi, my aunt, uncle and a few of his close friends I knew passed one around for him. BTW, the doc told me that was one treatment of some symptoms but they cant offically prescribe but he wanted me to know. But I started my prescribed treatment thursday (Avonex- an injection in the hip) and it made me feel like poo-poo thursday and friday and most saturday. I could barely move I hurt so bad. I give myself the shot every thursday for the rest of my life.......
well, this has turned into a book so I will let yall go. If you have any questions, I will answer them. I want people to ask in case I forget to ask something myself. so please ask me- even about my dad. so fire away...i want to talk about it and I feel like I am talking too much here at home... I missed you girls so bad, mandi

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Oh Mandi . . . my love and prayers and sympathies to you my friend.
Scarlett
my blog
{{{{{{HUGS}}}}}}
~Ginny~ <-- Click to send me email
(((((((((((( Mandi )))))))))))))
Robin
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What a hard time you are having. I cannot imagine. I did have a bad feeling about your symptoms but did not want to worry you. I feel really bad about this.
I am so sorry about your Dad. I know what you mean about the family vultures. I have some of those too. Makes me sick.
Do you have any idea what your Dad might have been going through. You said he hung up kinda wierd, do you think he was sort of saying his goodbyes?
How are you doing overall. I want to know everything mandi.
Bad days, good days, how advanced, how do you get this, can you live a normal life span with good days and bad days? Will the shots keep the bad days few and far between?
How are your and brandi's families acting towards you now? I hope they are being good and supportive to you.
I wish that I could reach out there and give you a big hug and tell you everything will be ok. I just don't know about that. You tell me. What all have they told you about living with MS?
I will keep praying for you. I have had you on my mind through all this time.
Is the medication helping you get your site back?
I am so sorry that you have to go through all of this mandi.
Love you,
Laurie
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baby crying, i'll continue later, mandi
Mandi, after reading through this thread it sounds to me like you may
C >^. A .
My condolences to you at this time. It is unthinkable the amount of pain a person can be in (physically/mentally) that will make them decide that they need to leave this world. As horrible is the weight of it all left on those behind. Im sure you are feeling so many things right now, and I wish for you peace of mind and heart if at least its only temporary.
Remember the good times you shared and how you felt about each other and take that with you.
Hugs,
Alisha
Mandi,
I cannot even find the right words to say how deeply sorry I am about your father and your diagnosis. Please know you are in my thoughts and prayers. I am so sorry my friend.
Hugs and love,
Sandra
Sandr
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