My week........
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My week........
| Mon, 02-28-2005 - 11:43am |
I will start by saying hi and I have missed all of you more than you will ever imagine and more than I probably should have. Ok, Friday morning I took Jeremy to school then went to the clinic. This is a county hospital clinic so I expected it to take between 4 and 10 hours to get done and home. It really only took me saying that I couldnt see out of my right eye and they were seeing me within an hour. I went in, told my symptoms and they (3 med students) checked me at seperate times and had me do some stupid human tricks and had their guess. then I saw a real dr and was told I was gonna have a CT Scan. This was about 5 hours after I had been there. I waited in the clinic...... then Brandi had to go get Jer from school and take him to her mom's. she came back and we waited several more hours and they took out my port (like and IV but with an attachment that they can give meds and take blood from). 5 mins after they told me I was being admitted since they couldnt get me a ct scan till early AM... I went to my room after 15 hours of waiting in this teeny tiny room with Brandi and I had a 100 y/o roomate and they told me that Brandi had to leave. I cried all night. I havent been away from her at night in over 5 years. Then they wake me up taking blood and putting the port back in and I had a migrane and threw up in the waiting room for the ct scan at 4:30 AM. The ct scan came back negative and they sent me for a MRI and more blood tests. Later that day I was told I do have MS and I was to be put on a high dose of steroids for 5 days and i had to stay till friday. They sent me for another MRI for my spine and neck (the first was the head). The neuroligist had a hard time believing I was walking. He said i had so much Placqes (sp) on my brain that I shouldnt be able to walk. Then I had to have a spinal tap to see if there was infection in my spinal fluid and to see how it will progress and how bad it really is and all that but I wont have those results for a few weeks.
** Then to top off the whole week, Wednesday I called Brandi to make sure she was ok getting the kids up and off to school and give her my love and all and she was kinda edgy. I didnt understand but she wanted to get off the phone. I did thinking she was stressed with the kids (she hasnt even had them both by herself before) so I didnt think much about it. about 20 mins after Jer would have been at school and she was to be at work she walked in my room. I was suprised and happy to see her. I asked "what are you doing here....." She told me that my dad hung himself the day before and died. I had just talked to him the day before and told him what was going on and we joked about him being my roomate instead of that woman and him getting his hernia fixed and getting all his ailments fixed.... we had a good conversation but he did get off the phone weired. So I got out of the hospital thursday and had my kids thurs night and friday night and went to my dads house (where I grew up in East TX) we looked throug his "life" and stayed the night and the funeral was yesterday. I hate that when someone dies all everyone thinks about is what they want out of it. I have had the hardest week of my life and all people can say is can I have...... or this was mine.... vultures! I got back from the funeral and there were 20 or so people on the porch, 10 or so in the living room and his girlfriend that didnt even know till saturday was in his room. alot of them were going through his personal things and it really pissed me off! I made most leave but some things my brother wanted are missing. we then smoked to my dad- I dont drink but I have occasionally smoked a J with my daddy so in memory me, brandi, my aunt, uncle and a few of his close friends I knew passed one around for him. BTW, the doc told me that was one treatment of some symptoms but they cant offically prescribe but he wanted me to know. But I started my prescribed treatment thursday (Avonex- an injection in the hip) and it made me feel like poo-poo thursday and friday and most saturday. I could barely move I hurt so bad. I give myself the shot every thursday for the rest of my life.......
well, this has turned into a book so I will let yall go. If you have any questions, I will answer them. I want people to ask in case I forget to ask something myself. so please ask me- even about my dad. so fire away...i want to talk about it and I feel like I am talking too much here at home... I missed you girls so bad, mandi
** Then to top off the whole week, Wednesday I called Brandi to make sure she was ok getting the kids up and off to school and give her my love and all and she was kinda edgy. I didnt understand but she wanted to get off the phone. I did thinking she was stressed with the kids (she hasnt even had them both by herself before) so I didnt think much about it. about 20 mins after Jer would have been at school and she was to be at work she walked in my room. I was suprised and happy to see her. I asked "what are you doing here....." She told me that my dad hung himself the day before and died. I had just talked to him the day before and told him what was going on and we joked about him being my roomate instead of that woman and him getting his hernia fixed and getting all his ailments fixed.... we had a good conversation but he did get off the phone weired. So I got out of the hospital thursday and had my kids thurs night and friday night and went to my dads house (where I grew up in East TX) we looked throug his "life" and stayed the night and the funeral was yesterday. I hate that when someone dies all everyone thinks about is what they want out of it. I have had the hardest week of my life and all people can say is can I have...... or this was mine.... vultures! I got back from the funeral and there were 20 or so people on the porch, 10 or so in the living room and his girlfriend that didnt even know till saturday was in his room. alot of them were going through his personal things and it really pissed me off! I made most leave but some things my brother wanted are missing. we then smoked to my dad- I dont drink but I have occasionally smoked a J with my daddy so in memory me, brandi, my aunt, uncle and a few of his close friends I knew passed one around for him. BTW, the doc told me that was one treatment of some symptoms but they cant offically prescribe but he wanted me to know. But I started my prescribed treatment thursday (Avonex- an injection in the hip) and it made me feel like poo-poo thursday and friday and most saturday. I could barely move I hurt so bad. I give myself the shot every thursday for the rest of my life.......
well, this has turned into a book so I will let yall go. If you have any questions, I will answer them. I want people to ask in case I forget to ask something myself. so please ask me- even about my dad. so fire away...i want to talk about it and I feel like I am talking too much here at home... I missed you girls so bad, mandi

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Ever the optimist, I was hoping that the medical condition would be something simple, like some unusual vitamin deficiency. Truly, that's what I thought I'd find when I opened your post. I'm so surprised, so saddened by your news that I just don't know what to say! I could cry on you plenty though... life is so unfair
All my love and sympathy~
HI Mandi
First off Many many *HUGS for all you have been thru.
aka
And as far as the MS goes, I am angry about it but it is something I will have to figure out. The part about it that scares me most is the not knowing what I will feel like tomorrow. Will I be able to walk or see or even pick up my baby? Can I drive my son the mile to school? Am I gonna forget something important? Who knows? maybe, maybe not. And my spelling...I was a very good speller in school and now I have to really think to get it right, sometimes using more simple words to make it easier. They didnt tell me anything at the hsptl and I am mad about that too! They had councelors talk to me every day but I didnt know how bad I was till I came home. Why didnt they tell me? Well, I know now and I just have to educate myself as best I can. Thank goodness I have internet! But still, the only thing they told me is that they were suprised that I could still walk. My brain is covered with I guess what they call lesions...whatever that is, I am still not sure about that. But I am walking and I am still doing what I normally do, just a little slower and wobbly. So I will be fine. thank you very much!
(((((((((((Mandi)))))))))))))) I'm so sorry for all that you have been through. You are amazingly strong to have held up so well through it all. You always have such a positive outlook no matter what, and I'm sure that will help get you through your treatments. Take good care of yourself. It's wonderful to have you back.
Hugs,
(((((((((((Mandi)))))))))))))
I'm so sorry for all you are going through. Please email me anytime if you would like.
Big hugs to you and the family.
~
mandi (sigh)
{{{Mandi}}}}
You have my hugs, condolences, and love.
Carol, In love with the most beautiful woman in the world.
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