My week........

iVillage Member
Registered: 07-24-2003
My week........
32
Mon, 02-28-2005 - 11:43am
I will start by saying hi and I have missed all of you more than you will ever imagine and more than I probably should have. Ok, Friday morning I took Jeremy to school then went to the clinic. This is a county hospital clinic so I expected it to take between 4 and 10 hours to get done and home. It really only took me saying that I couldnt see out of my right eye and they were seeing me within an hour. I went in, told my symptoms and they (3 med students) checked me at seperate times and had me do some stupid human tricks and had their guess. then I saw a real dr and was told I was gonna have a CT Scan. This was about 5 hours after I had been there. I waited in the clinic...... then Brandi had to go get Jer from school and take him to her mom's. she came back and we waited several more hours and they took out my port (like and IV but with an attachment that they can give meds and take blood from). 5 mins after they told me I was being admitted since they couldnt get me a ct scan till early AM... I went to my room after 15 hours of waiting in this teeny tiny room with Brandi and I had a 100 y/o roomate and they told me that Brandi had to leave. I cried all night. I havent been away from her at night in over 5 years. Then they wake me up taking blood and putting the port back in and I had a migrane and threw up in the waiting room for the ct scan at 4:30 AM. The ct scan came back negative and they sent me for a MRI and more blood tests. Later that day I was told I do have MS and I was to be put on a high dose of steroids for 5 days and i had to stay till friday. They sent me for another MRI for my spine and neck (the first was the head). The neuroligist had a hard time believing I was walking. He said i had so much Placqes (sp) on my brain that I shouldnt be able to walk. Then I had to have a spinal tap to see if there was infection in my spinal fluid and to see how it will progress and how bad it really is and all that but I wont have those results for a few weeks.
** Then to top off the whole week, Wednesday I called Brandi to make sure she was ok getting the kids up and off to school and give her my love and all and she was kinda edgy. I didnt understand but she wanted to get off the phone. I did thinking she was stressed with the kids (she hasnt even had them both by herself before) so I didnt think much about it. about 20 mins after Jer would have been at school and she was to be at work she walked in my room. I was suprised and happy to see her. I asked "what are you doing here....." She told me that my dad hung himself the day before and died. I had just talked to him the day before and told him what was going on and we joked about him being my roomate instead of that woman and him getting his hernia fixed and getting all his ailments fixed.... we had a good conversation but he did get off the phone weired. So I got out of the hospital thursday and had my kids thurs night and friday night and went to my dads house (where I grew up in East TX) we looked throug his "life" and stayed the night and the funeral was yesterday. I hate that when someone dies all everyone thinks about is what they want out of it. I have had the hardest week of my life and all people can say is can I have...... or this was mine.... vultures! I got back from the funeral and there were 20 or so people on the porch, 10 or so in the living room and his girlfriend that didnt even know till saturday was in his room. alot of them were going through his personal things and it really pissed me off! I made most leave but some things my brother wanted are missing. we then smoked to my dad- I dont drink but I have occasionally smoked a J with my daddy so in memory me, brandi, my aunt, uncle and a few of his close friends I knew passed one around for him. BTW, the doc told me that was one treatment of some symptoms but they cant offically prescribe but he wanted me to know. But I started my prescribed treatment thursday (Avonex- an injection in the hip) and it made me feel like poo-poo thursday and friday and most saturday. I could barely move I hurt so bad. I give myself the shot every thursday for the rest of my life.......
well, this has turned into a book so I will let yall go. If you have any questions, I will answer them. I want people to ask in case I forget to ask something myself. so please ask me- even about my dad. so fire away...i want to talk about it and I feel like I am talking too much here at home... I missed you girls so bad, mandi

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iVillage Member
Registered: 04-13-2002
In reply to: mjewell52
Wed, 03-02-2005 - 11:38pm

Hi Mandi,


iVillage Member
Registered: 07-24-2003
In reply to: mjewell52
Thu, 03-03-2005 - 4:00pm
Welllllll, about 2 months ago, I guess, I woke up with my hands tingly. Thought I slept on them and it would go away...it didnt. A few days later my feet were tingly too. then it went up my legs to my knees which are mostly numb (still). Then I woke up on Feb 8th (had a WIC appt for Jasmine) and couldnt see very well out of my right eye. It was dark and had a dark line through the center of my vision. Till the eye started, I thought I was anemic or stressed or something but when the eye started I looked up my symptoms and came up with MS. Of course I thought I would go to the dr and they would say I was stressed or something simple. I wish I had gone when all this started but I didnt have insurance and I had a hard time getting people to believe this was really happening. Ya know if you cant see it it really isnt happening, right? If I had gone though, most of these problems would never had started and they may never go away now. But I did go and I am glad I did. It was the longest and hardest week of my life. Thank God it is over and I wont ever have to do it again! I went to the neurologist today and he said I shouldnt get worse but the symptoms I am having may never go away or they may go away and never come back. My spinal tap results were bad I think- ya know drs never tell you how bad but he seemed suprised that I dont have any speech problems and I am walking better than my brain is telling them I should be. So, at least I am walking and talking and I seem to be typing faster but with more typos. My brain is slower than my typing and I am having a hard time concentrating on everything.... well, I gotta go wrap presents for Jer's birthday Saturday, so I will talk later. Have a good day! PS thanks, I think my munchkins are adorable too!

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