please pray for new nephew, 3% survival

iVillage Member
Registered: 08-24-2004
please pray for new nephew, 3% survival
4
Sat, 04-09-2005 - 11:05am
hi all. sorry i've been MIA. lots going on in my life, and nothing much good either.
night before last (thursday night) about 3 AM we got the call. my SIL had to have an emergency c-section because the baby was in distress and the dr said if we don't take him NOW (as in, no time to transfer to bigger facility where they were supposed to go according to plans) then he will die. so of course they took him.
we knew he'd be born with his intestines on the outside, possible club foot and a problem with one arm. it's far, far worse than that. his chances with that were about 80%. they gave him 3% after seeing him. i will try to remember some of what is wrong, but there were SO MANY things i would have needed to take notes yesterday.
basically, all but his heart and lungs were on the outside and NOT encased in the protective membrane as it should have been - just loose in mommy's tummy. they didn't think they would be able to get it all in during one surgery due to his small size (although full term, his body was just too small because of NOT growing with those things inside). other things...none of his joints in his upper body are properly formed or workable. he can't move, but his spine is formed correctly. his legs look fine, luckily, his foot slightly turned but not classified club foot. they said he has cleft palate, which isn't severe and can be fixed with surgery - providing he survives everything else. at first they didn't think he had all the bones in his arms and hands, but as of last night (when we traveled 2 1/2 hrs to see him) they thought he did. they couldn't see 2, but they believe they are indeed there. all of the pieces of his brain are present, but they hadn't gotten the EEG in yet so they didn't know if all of the pieces are functioning (as in, is HE in there or is this a body they are keeping alive on life support?). he can't breath on his own. they barely got tubes down his throat, because they couldn't open his jaw. it was somehow *stuck* shut. finally they did, thank GOD! they can't draw blood for the chromosonal tests, to see if he has some sort of disorder or disease causing all of this, because even when they hit a vein, his blood is so thick they can't get it to come out.
the attempt at the picc line (a longer-lasting form of IV, my son had one, has to be surgically implanted in the arm) failed. they are going to make another attempt monday, once his veins have had a bit more time to form up.
the good news? they DID get all the organs, intestines, etc, in during ONE SURGERY! YAY! that reduced his chances of infection greatly, if none decides set in from that surgery and the travel from our hospital to wichita (yes, home of the BTK killer city).
his mom is recovering here, they will not let her out because of the c-sect nor transfer her to wichita to be with him until at least late today if not tomorrow (they say sunday). his dad (my BIL) is in wichita with him and in a complete and total daze. his twin brother is there with him. my DH and i went up and so did MIL yesterday, she stayed the night but we couldn't cause of our son, of course. we must be ready to drop and run if we get the call though. the dr's are positive, but not saying much yet. they DID say he might survive all of this, only to drop dead a year from now and there would be nothing they could do. in 10 days or so, they hope to know more.
so please, please send your most heart-felt prayers that my new baby nephew, bronson, continues to pull through and beat the odds. please pray for us, and his parents, and all his family that we are strong enough to handle whatever god decides. it is breaking our hearts.
it brought back so many memories of my own son, who is a severe hemophiliac, and all the times we have nearly lost him in his 2 yrs of life, beginning at day 2. the tubes, the needles in his head, the helpless feeling...DH and i both said it hurts all the more because we have been in similar situations and know just how awful it feels to be able to do NOTHING for your own child and not know if he'll live or die, or if he lives, if he will be HIM or somehow different.
thank you all for your help in this.
(((hugs)))
leslie
Avatar for jukie33
iVillage Member
Registered: 03-25-2003
Sat, 04-09-2005 - 11:22am

I will be praying for Bronson and your whole family! I pray that the Comforter will stay near to you all giving you the Lord's Peace! Keep us updated please.


All My Prayers,


Julie

iVillage Member
Registered: 03-11-2004
Sat, 04-09-2005 - 1:02pm
P&PT's to you & yours & dear baby Bronson. jan



 

 


 



iVillage Member
Registered: 03-26-2003
Sun, 04-10-2005 - 12:01pm

Oh Leslie, How heart wrenching, How is baby Bronson doing now? Ya know miracles happen every day so we just have to believe that he is going to be part of a miracle and make little steps every day towards becoming healthier and stronger.


My prayers to you, your family & most importantly the little baby that

Hugs & Positive Thoughts Always,

iVillage Member
Registered: 02-05-2005
Sun, 04-10-2005 - 2:12pm
Oh my, I am so sorry. I will be praying for him and for all who love him. (((HUGS)))