((((((((((((((((((((((((((((((((((((((((((((( ROMA ))))))))))))))))))))))))))))))))))))))))))))))), please don't worry about bringing people down when you vent.
Hey Roma, there isn't one person on the board that doesn't understand how you feel. Right now I am walking like one leg is shorter than the other because my hip has given out on me. The pain is awful and I have at home a 9-week puppy - timing here was stupid because I know the hip will have to be replaced like my other. I am going to see the ortho Tuesday but I cannot have anything done until after my 14 year old granddaughter's graduation from junior high in June. You know I hurt when Vicodin does nothing!
Roma I will be thinking of you and keeping you in my prayers. Pain hits a point after time when you don't think you can take it anymore - but you can and you do!!!! God bless.
Roma, please know that we all know and understand how you feel. I can't believe that there is a single soul with this darned disease that has not asked "why me" more than once. The pain can just wear you down until you have no energy or desire to do anything but stare at the walls. I do understand. Like you, pain medications just don't work for me the way they should. So, many times, I have to give myself a good talking to and tell me to get up off my rear and just do something. Sounds like your grandson is what gets you to take that step.
I also agree that the state of medical care in this country is appalling. I really think it is going to take a major voter revolt to make the necessary changes, and I do think it is coming with the aging of the population. There will be enough of "us" who vote to be heard. But, I think we really have to organize (AARP, Arthritis Foundation, Heart Assoc, etc.), work at it, and vote to be heard. I know that one thing that keeps me employed (besides really loving my job) is that I could never afford health insurance (if I could even obtain it considering the pre-existing conditions problem) on my own. There are lots of people like me--one pay check away from being uninsured. I know that the insurance premiums for my husband and I are over $1200 a month--who could afford that on their own?
And don't give up on treatments or, who knows, maybe even a cure. I really believe it is out there, and someone is going to stumble over it--hopefully sooner than later. They just keep chipping away at the various components of RA, and the final chip will fall someday.
Roma, I am sending a mental telepathy cuddles & kiss for you.
I hate this disease as much as you just like us all, but alas there is no cure yet, maybe at school somewhere in the world a young child has a mum or dad with RA, and he or she is planning on growing up becoming a scientist & finding a cure for RA. How better will the world be then without its top of the list world wide most debilitating disease, affecting the millions of people it does.
I am so sorry you are having such a bad time I wish I could help, maybe you would like to pop over for a coffee sometime? My door is always open.
Just a thought, but maybe if you can get your hands on some mariguiana ( I cant even spell it ! ) So I best say out right why not try some good old fashioned dope for the pain if your over the counter meds are offering you help now & the pain is so bad. I considered it very carefully when I was in a bad way, but given the job I do and I was still working thought better of it since it is an illegal substance. However at morning tea one day (last year) my RA & pain relief became the round table discussion in the operating theatres, all the surgeons, aneathetists & nursing staff present thought I should use it, my only reason for not getting my hands on some was my kids who are teenagers, if at some stage I get bad again & I am not going to work I will get some & try it for pain relief. (So why not try it, if you havent already ) am am sure there would be someone you know who could get you some.) ****** clause******* having typed that the person posting this post in no way endorses drug abuse legal or illegal, profitering from illegal drugs, or importing illegal drugs into foreign countries ********** hope the next few days get a bit better for you Roma. love lell. PS let me know when to put the jug on.
(((((Roma))))) When you are feeling as badly as you are you spell grey CRAPPY! It's just a crappy day, grey or not when that pain and misery sets in. I'm with you Roma...I absolutely HATE this rotten disease! Hugs to you and prayers for relief from pain. Diane
((((((((Roma and Sue))))))I am so sorry for your pain but have to tell you I am joining in the complaint dept. My neck is so bad riet now I want to nose it! As of this AM I am going back on the celbrex to see if it will help. Like you Roma nothing ever really helps that pain. So I have to say if I could get my hands on some riet now I`d take me soem maraquana(You know I can`t spell it). Too bad it isn`t legal in this country for pain. It would cost me nearly a 1000$ to go throogh the epidurals and facets but if this doesn`t stop I will go for them. It`s been 3 yrs since i had thme the first time and they helped so much. I am going through a lot of personal stress riet now.That added to the surgery I had 6 wks ago. Everytime i`ve had surgery this neck acts up. I am trying to be patient but the pain is getting to me. OK I`m done! bev
Awgee thanks Molly! Your the greatest!! I`m just havin some fam problems. Grown son had to move back in with us for a while. My husband treats him like a child.So things are just not going well.This wont be for long. The really sad thing is our son will be moving to FL,we live in NEOH.I will miss him but he has a really great opportunity there and he needs to get going with it. Ok and i will add though I love him very very much my DH is a very neg,unhappy,angry person. I think it has a lot to do with his childhood. He is not at all socialble.He doesn`t believe in counceling so thatis out.I have stood by this man for nearly 40 yrs so you se he must have some good qualities. Thank God I have a network of wonderful friends and family.They all love me make me laugh and fill in the void.So thats pretty much my story.
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((((((((((((((((((((((((((((((((((((((((((((( ROMA ))))))))))))))))))))))))))))))))))))))))))))))), please don't worry about bringing people down when you vent.
Molly
Hey Roma, there isn't one person on the board that doesn't understand how you feel. Right now I am walking like one leg is shorter than the other because my hip has given out on me. The pain is awful and I have at home a 9-week puppy - timing here was stupid because I know the hip will have to be replaced like my other. I am going to see the ortho Tuesday but I cannot have anything done until after my 14 year old granddaughter's graduation from junior high in June. You know I hurt when Vicodin does nothing!
Roma I will be thinking of you and keeping you in my prayers. Pain hits a point after time when you don't think you can take it anymore - but you can and you do!!!! God bless.
Roma, please know that we all know and understand how you feel. I can't believe that there is a single soul with this darned disease that has not asked "why me" more than once. The pain can just wear you down until you have no energy or desire to do anything but stare at the walls. I do understand. Like you, pain medications just don't work for me the way they should. So, many times, I have to give myself a good talking to and tell me to get up off my rear and just do something. Sounds like your grandson is what gets you to take that step.
I also agree that the state of medical care in this country is appalling. I really think it is going to take a major voter revolt to make the necessary changes, and I do think it is coming with the aging of the population. There will be enough of "us" who vote to be heard. But, I think we really have to organize (AARP, Arthritis Foundation, Heart Assoc, etc.), work at it, and vote to be heard. I know that one thing that keeps me employed (besides really loving my job) is that I could never afford health insurance (if I could even obtain it considering the pre-existing conditions problem) on my own. There are lots of people like me--one pay check away from being uninsured. I know that the insurance premiums for my husband and I are over $1200 a month--who could afford that on their own?
And don't give up on treatments or, who knows, maybe even a cure. I really believe it is out there, and someone is going to stumble over it--hopefully sooner than later. They just keep chipping away at the various components of RA, and the final chip will fall someday.
Hope the sun comes out for you tomorrow.
Rosemary
Roma, I am sending a mental telepathy cuddles & kiss for you.
I hate this disease as much as you just like us all, but alas there is no cure yet, maybe at school somewhere in the world a young child has a mum or dad with RA, and he or she is planning on growing up becoming a scientist & finding a cure for RA. How better will the world be then without its top of the list world wide most debilitating disease, affecting the millions of people it does.
I am so sorry you are having such a bad time I wish I could help, maybe you would like to pop over for a coffee sometime? My door is always open.
Just a thought, but maybe if you can get your hands on some mariguiana ( I cant even spell it ! ) So I best say out right why not try some good old fashioned dope for the pain if your over the counter meds are offering you help now & the pain is so bad. I considered it very carefully when I was in a bad way, but given the job I do and I was still working thought better of it since it is an illegal substance. However at morning tea one day (last year) my RA & pain relief became the round table discussion in the operating theatres, all the surgeons, aneathetists & nursing staff present thought I should use it, my only reason for not getting my hands on some was my kids who are teenagers, if at some stage I get bad again & I am not going to work I will get some & try it for pain relief. (So why not try it, if you havent already ) am am sure there would be someone you know who could get you some.)
****** clause******* having typed that the person posting this post in no way endorses drug abuse legal or illegal, profitering from illegal drugs, or importing illegal drugs into foreign countries **********
hope the next few days get a bit better for you Roma. love lell.
PS let me know when to put the jug on.
Molly
It would cost me nearly a 1000$ to go throogh the epidurals and facets but if this doesn`t stop I will go for them. It`s been 3 yrs since i had thme the first time and they helped so much.
I am going through a lot of personal stress riet now.That added to the surgery I had 6 wks ago. Everytime i`ve had surgery this neck acts up. I am trying to be patient but the pain is getting to me.
OK I`m done!
bev
Molly
Ok and i will add though I love him very very much my DH is a very neg,unhappy,angry person. I think it has a lot to do with his childhood. He is not at all socialble.He doesn`t believe in counceling so thatis out.I have stood by this man for nearly 40 yrs so you se he must have some good qualities.
Thank God I have a network of wonderful friends and family.They all love me make me laugh and fill in the void.So thats pretty much my story.
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