A COLLECTIVE SCREAM!
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A COLLECTIVE SCREAM!
| Wed, 06-08-2005 - 1:18pm |
I was reading the posts this morning and had a thought.
| Wed, 06-08-2005 - 1:18pm |
I was reading the posts this morning and had a thought.
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You got it, Molly. Know what--I think I hate most the way RA complicates my life. From the smallest things like what you are going to wear (such as -- slacks today because no way my hands were going to manage pantihose this morning) to the big things (earning a living -- can I still get myself to work, and for how long will I be able to do so). We were looking for a car, and some considerations were how easy it was to get in and out of, if there were any arm rests that were not "cushy" enough for my sore elbows; was there enough leg room that I could squirm around and not get stiff; where did the seatbelt hit my sore shoulder, etc. Going out to dinner -- does the restaurant have comfortable seating (not booths that are so low you can't get out of them). Going to the grocery -- forget which has the best prices, instead, which one is least busy so you can find a close parking space. To say nothing of dealing with the medications and then the medications to temper the side effects of the first medication. It goes on and on and on. Now by nature, I am a positive person and usually take things pretty much in stride. BUT sometimes the smallest thing will really drop-kick me. The last occasion was trying to reach a sweater on a shelf in the closet on a day my shoulder was really acting up, I couldn't raise my arm high enough to reach it, and I was home alone. If you could have heard the language as I stalked downstairs to get the stepstool. A mere scream would have been music to your ears.
So, add my scream to all the rest. At least we all know we are not alone.
Rosemary
Molly, you make me laugh!!! I will definitely scream with you!!!!!!!!!
AAAAAAAAAAAAAAAARRRRRRRRRRRRRGGGGGGGGGGGGHHHHHHHHHHHHH
$@!#$%#@!%%$*$*#@#$%$@**$#@!@#$%&&*&#$&#@!@!@*&%$
AND CAN'T FORGET
POOOOOOOOOOOOOOOOOOP!! I LOVED THAT ONE!!
Oh, I feel better already!
Thanks,
Vicki
I hate...
1. feeling like crap all day long every day...some days are better than others but i haven't had a really good day in a long time.
2. trying to figure out if I feel like crap because of a. RA b FM c. Crohn's d. medication side effects e. side effects from the meds i take to help with the original med side effects
3. taking every med in the house and still being in pain
4. trying to find empathy for other people's aches and pains (a co-worker was complaining about a headache so I mentioned to her (politiely I promise) that I had had a headache almost everyday for 5 yrs and that without morphine daily I would have had one EVERY day.)
5. wanting to play with my 8 yr old somewhere other than from the comfort of the couch or my bed...her school went to our local water park for the day yesterday and I went for half a day and I am paying for it now.
6. 35 pills a day and 2 shots a week just to get out of bed and work part-time...don't ask about my house- I don't take enough medication yet to keep up with it! lol
OK OK I will stop...I must admit that this SCREAM is perfect timing...I cried all the way home from work this morning at 3am just thinking about how I was going to get out of the car and walk up the stairs to bed.
AAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHH
Heidi
Molly
Molly
Molly
Molly
You asked for it Molly :)!
I HATE, let me repeat, HATE insurance companies! I'm in the process of switching from Blue Cross to Aetna so I can get better coverage for this #%$###(*& Enbrel. I've sent them tons of legal documentation showing that we're (my husbands company) a legitimate company, yet there's this one document they insist on having. So right now I'm at the Secretary of State's mercy and was told it will take 6-9 weeks to get this document. In the meantime I'm not going to get my original quote, but will have to pay the rate increase effective June 15.
I HATE having to inject myself every week with Enbrel. I absolutely dread having to do it, no matter how many times I've done it, I still hate it. I know, I shouldn't be *&#@$% about it because it's helping me, but it doesn't mean I have to like giving myself a big fat shot every week.
I HATE that my hands are so knarled (sp?)up and are so ugly now. The damage has been done and they'll never look like they used to.
I know I could go on and on about all the things I hate about having RA, but I think I'll just scream now instead! AAAAAAAARRRRRRGHHHHHH! Now I feel much better! Thanks for starting this thread Molly!
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