hello ladies
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| Fri, 10-14-2005 - 11:16pm |
HELLO LADIES!
I STOPPED IN TO GET YOUR OPINIONS ON A FEW THINGS AND I NOTICED YOU HAVE BEEN WONDERING WHERE I HAVE BEEN. I WILL POST AN UPDATE ON MOM LATER.
I SAW MY RHEUMIE ON WEDS AND DID NOT LIKE WHAT HE HAD TO SAY. HE SAID THAT MY INFLAMATION LEVELS ARE UP. I ASKED HIM IF THE ENBREL COULD STOP WORKING. HE SAID NO IT USUALLY MEANS THAT THE RA IS GETTING WORSE. UGHHHHHHHHH!!!!!!!!!!! HE SAID THAT I AM ON THE HIGHEST DOSE OF ALL MY MEDS. I EXPLAINED TO HIM THAT I HAD BEEN TRAVELING AND ALSO UNDER A LOT OF STRESS BECAUSE OF MY MOM. HE SAID THAT THE LEVELS HAVE BEEN STEADILY INCREASING SO WE REALLY NEED TO ADD ANOTHER DRUG. HE GAVE ME A SCRIPT FOR AZULFIDINE 500 MG TWICE A DAY ALSO PREDNISONE EVERYDAY. I REALLY DO NOT WANT TO TAKE ANOTHER MED. I LOOKED UP THE SIDE EFFECTS AND IT MENTIONED STOMACH UPSET. YUCK!!!!!!! DO YOU THINK I SHOULD JUST TAKE THE PRED AND SEE IF THAT MAKES ME FEEL BETTER? I HATE TAKING THE PRED TOO. I AM ALREADY OVERWEIGHT. MY DOC ALSO WANTS ME TO HAVE CTS SURGERY. AGAIN I AM NOT INTERESTED IN THAT. SO HE ORDERED CUSTOM WRIST SPLINTS. I WENT TO GET THEM TODAY AND THEY HAVE TO BE CASTED. I GO BACK ON MONDAY FOR THAT. HAVE ANY OF YOU HAD CUSTOM SPLINTS. WERE THEY WORTH IT? I HAVE TO PAY 20% OF THEM. CAN YOU GIVE ME AN IDEA ON THE COST? WHEN I LEFT THE DOCS OFFICE I WAS IN THE DUMPS. I THOUGHT OF YOU LADIES AND KNEW I COULD COME HERE TO BOO-HOO ONCE AGAIN. I HAVE MISSED YOU LADIES IMMENSELY AND I THINK OF YOU QUITE OFTEN.
MISS YOU HUGS
CLAUDIA

((((((((CLAUDIA))))))) SO HAPPY TO SEE YOU, BUT NOT UNDER THESE CIRCUMSTANCES. I DON'T
HAVE ANSWERS, IF IT WERE ME, I WOULD TAKE THE PREDNISONE AND SEE WHAT HAPPENS. I DO KNOW
THAT STRESS CAN EAT US UP AND SPIT US OUT!!! I KNOW WHAT THE STRESS OF MY MOM'S CANCER
DID TO ME. IT WASN'T PRETTY. ARE YOU ON AN ANTI-DEPRESSANT? I CAN'T REMEMBER. I WILL
BE SAYING PRAYERS FOR YOU THAT YOU CAN CONTROL THE RA.
PLEASE LET US KNOW HOW YOUR MOM IS DOING.
LOVE AND HUGS,
VICKI
Bev
(((((((((((((((( CLAUDIA )))))))))))))))), I'M UNHAPPY FOR YOU THAT THE RA IS PROGRESSING AND I DO UNDERSTAND YOUR NOT WANTING TO ADD MORE MEDS TO YOUR COCKTAIL.
Molly
Vicki, Bev, and Molly,
Thanks for your suggestions and warm thoughts. I finally excepted the fact that I need more meds to help me feel better so I decided to take the pred for a quick fix. I am feeling a tiny bit better. I ordered the Azulfidine. My doctor said it will take 2-3 months to work. I also had the casts made for the custom wrist splints. I have to pay 20% of the cost which will be 87 dollars. I hope they are worth it.
Vicki, yes I am taking Lexapro and trazadone.
Hugs to all
Claudia
(((((Claudia)))))
So glad the pred is helping some. It is good to change the meds around when you need to. I am on Trazodone too, it works great. Myra had told me about it. :o) I hope you continue to improve. Sending my prayers to you.
Hugs,
Vicki
Hi claudia it is nice to (see ) you again.
I have to say I am on the fat side myself & the pred doesnt help either, but my bikini days are long gone and I dont think anyone is checking out my figure these days, but it bothers me more because of the extra weight on my joints. ( I shall pledge to get back on my healthy eating plan which I strayed from.....starting with the next grocery shop )
I have custom made splints, they a from the tips of my fingers to just short of my elbows )and although I have not used them for a while I found that when my hands were just in unbelievable pain when I was in a full on flare that I did get relief, just because I could rest them.
The down side was with two on I couldnt do much, I was forever slipping my hand in and out of the strapping to even turn a page of a book, which is hard enough to hold with 2 splints on but I used to do it. When I slept with them on I would wake up with them soem where in the bed, obvously taking them off in my sleep.......
I also found them not very " romantic " Hubby winking at me and I would have two large plastic things attached to my hands. ( this even became the laughing discussion with my sisters & inlaws one night out... I have to say we killed our selves laughing, with the many alternate uses for my splints, they came up with.)
I really dont know if they will help you or not. I did not have to pay for mine as I was an in hosptial at the time. I am sure if you contact the area who makes them they would give you a quote on the cost.
Molly