Hi again, it's me from across the pond

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anonymous user
Registered: 12-31-1969
Hi again, it's me from across the pond
1
Sat, 05-03-2003 - 6:30am
Thank you for your welcome. Must apologise for using my cl-cap couldn't find a way to get rid of it b4 I posted lol.

Just wanted to ask what is the general attitude from the US medical professionals towards conditions like CF and Fibromyalgia?

I was told I had M.E by my former GP (which I think the US call Chronic Fatigue?) 12 yrs ago and it has progressed to a state where ppl have suggested Fibromyalgia. Unfortunately neither of the two Neurologists I have seen (I have also been tested 2x for Multiple Sclerosis) believe that CF or Fibro are 'real' diseases so I have been more or less left to cope. My GP is also sceptical though after a visit to a Phsychiatrist and Neuro-psychologist at his suggestion (did I have a choice lol)...he now accepts that I do NOT have a pshycosomatic illness...( he said it was "all in your mind"....)

The only 'treatment' I get is repeat prescriptions for pain relief which after 12 years isn't working very well. As well as getting exhausted I suffer a great deal of muscle pain and stiffness if I sit in one position for longer than 10 mins, and find walking almost impossible. I was a very active person prior to this and I still push myself to garden (which I love) and re-decorating though I can only hold a paint brush for a maximum of 20 mins on a good day. I get very frustrated as my mind is very active and I want to do so much more than I am able.

Have any of you ladies got this condition? Do you know of any treatments that help imrove this condition?

Thanks in advance for any replies.

Love to all,

maggie

iVillage Member
Registered: 03-19-2003
Mon, 05-05-2003 - 6:37pm
HI Maggie

Sorry you didn't get many answers to your post it seems to have slip back to the archives and I don't think many people read it this should help to bring it back to the front again.

I think that maybe fibro is now getting more attention here in the US and finally being recongnize as a disease. I don't have that problem but my sil does and this is what she tells me.

Hugs

Mary

                          &n