Ok, guess this is good news, not so sure

Avatar for cl_campmum_of3
iVillage Member
Registered: 03-19-2003
Ok, guess this is good news, not so sure
11
Sat, 06-07-2003 - 2:22pm
though. Akiva is not on the ventilator any longer she is now on a bubble CPAP

which means she does not have tubes down into her lungs to help her breathe but in her nose only now. FOr a while there she wasn't breathing at all they had to bag her, now that I am assuming means keep pushing air in with a bag. They have moved her Iv from her head to her foot to her arm as the foot got all swollen up, guess the infection will do that. We still do not have the results from the Lumbar puncture, suppose to hear about that today now.

The kids are as you can well imagine all stressed out, they said their beautiful baby has a patchy head where they shaved her and she is so swollen up and so listless because they have her sedated. When I talk to them they try to sound so upbeat but they really sound scared and stressed. Alan I think is finding that he is on overload and seems to not be able to understand anything they say anymore, he said it is all sounding like a foreign language, but Nikki she is the one who is asking a zillion questions and then going and studying what it all means. It is so hard to hear them both trying to sound so positive,

and stuff when I know darn well they are shaking in their boots.

I so wish that things would hurry and turn around for her, but the doctors did say that it takes only a short time to become septic but a lot longer to recover.

I guess when I look back over the days though there have been big steps like from not breathing at all to getting only the help of the CPAP, and from no feeds to small ones starting last night. Yep things will come back to where we can relax a bit, but in their own time.

Now how does that saying go good things come to those that wait.. yea I will take that!

Ok now I am going to go outside and soak up some of that sun before it gets too hot. This is the third or fouth day of sunshine and I have tried to enjopy a little of it each day. Yesterday I even cut the lawn, but it took me a good part of the day to get myself motivated to do it. We have been having temps of around 90F, so it feels super hot to me.

Well will go now and mess about! Will keep you posted as I hear.

Hugs, Lor

     

 

          

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iVillage Member
Registered: 03-20-2003
Sat, 06-07-2003 - 2:31pm
That sounds positive and that there is improvement, any is good, right?!! This little girl will pull through, she is strong and determined, that's for sure. I know this is stressful for all of you, but you are a close family and together you can get through this. Big Hugs and Prayers, Gabby

       


 


                              &n

iVillage Member
Registered: 03-19-2003
Sat, 06-07-2003 - 2:59pm
Lori my heart goes out to Nikki and her dh as they struggle and watch their little girl fight so hard to live. Any improvement is a good one from where she was. I will be checking back here as much as I can to see how she is doing. Also email me if you have the time as I will be checking there as well.

Sending lots of prayer and postive thoughts your way and on to little Akiva!1

Love

Mary

                          &n
Avatar for foxie5
iVillage Member
Registered: 03-26-2003
Sat, 06-07-2003 - 3:16pm
Lori,

I have to say it sounds like good news in little steps but still good news. It must be hard for Nikki and Alan, and you and Al too. I will keep you all in my prayers. Now enjoy that sunshine, and send some here we have rain again!

Keep us posted! Hugs! Debby:)

 

Avatar for cl_cencia911
iVillage Member
Registered: 03-20-2003
Sat, 06-07-2003 - 3:35pm
Lor, I will take it as good news that she does not

have tubes down to the lungs. And the patches and

swollenness, those things are temporary in the long

run.

I know it is hard for some to understand, but the kids

need to "be gravely concerned" and at the same time

not worry too much; they need to learn that God has

Akiva on his heart and that he is guiding the doctors.

Worry and fear are the total opposite of faith.

So with that said, I will continue in prayer for precious

Akiva, as prayer moves the hands of God.

How are Melissa and Brittany doing? did you show them all

of the Vegas pictures?

BIG HUGS! Cindy

~*~*~All..things..work..together..for..good.....~*~*~



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iVillage Member
Registered: 04-09-1999
Sat, 06-07-2003 - 4:26pm
Lori, Sure is good news!! And it is going in the right direction...a little improvement every day is a GOOD THING. Stay Strong for Nikki and her dh..and for Akiva...Continued prayers for your family!

Hugs

RJ


 


Avatar for sassysooze
iVillage Member
Registered: 03-25-2003
Sat, 06-07-2003 - 5:14pm
Lori,

Good news sometimes comes in small increments, but its still good news! Akiva and all of you are still very much in my prayers!

Hugs,

Sooze

Susan siggie
Avatar for mindy46
iVillage Member
Registered: 03-25-2003
Sat, 06-07-2003 - 7:59pm
lor i cant even imagine what those kids are going thru,fear,heartache,stress and yet such hope!!!your rite though it will take time,but akiva sounds like a fighter and she has that on her side,plus all the prayers that god is hearing on her behalf!!(((hugs)))mindy
iVillage Member
Registered: 03-25-2003
Sat, 06-07-2003 - 8:13pm
Lori, sounds like she is taking small steps of improvement and that's all we can ask right now. Cen said it so well in that it is in God's hands. Just want to remind you of all the prayers for little Mallory and how well she's doing, also, one of the teachers at ds's school had a dd with only 1/2 heart (about the same time as Mallorie maybe). All the kids in school took up a collection to help for operations, and prayed daily for that little baby. We just got a note in our Friday folder from the mom that her little one has had 3 operations, but she is doing well, and crawling, etc. Still more surgery ahead, but just look at the power of prayer for those little ones. Take heart in this and please pass on to Nikki. Will continue to keep her and Nikki and dh in my prayers, and you continue to let us know how she's doing....bigh (((hugs))) Charlie
iVillage Member
Registered: 03-25-2003
Mon, 06-09-2003 - 9:27pm
Lori it does take a long time to recover from a septic condition but you said she is eating and that is a good sign. she is not out of the woods yet but it is a good sign. the reason her arm swelled up was probably because it irritated the sight and the switch to the foot was a good call. Will keep her in my prayers. Love, Bern
Hugs, Bernie
iVillage Member
Registered: 03-25-2003
Tue, 06-10-2003 - 12:39am
Lor,

Continued prayers and positive thoughts for Akiva. Wait, you are going to be amazed at how fast those little ones bounce back up. Wouldn't have believed it myself if it hadn't happened more then once right before my eyes. Now that she is eating, her weight should go up quickly.

You just may be putting up that "Welcome Home" sign, sooner then you think. Good wishes to you all. Hope you get through this without to much more stress.

Hugs,

Rain

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