Told I don't share what is happening ...

iVillage Member
Registered: 03-25-2003
Told I don't share what is happening ...
6
Sun, 02-24-2008 - 8:02pm

so get comfy and grab a drink. Going to explain the best I can.


Specialists have been running tests for years now. They can find and see what is wrong, not the cause.


Something is attacking and killing nerves here. In my brain, legs etc. Has effected my eyes, balance and general well being. Causes noises and bright flashes of light in my sleep. Kind of like someone clapping cymbals together with lightening for a background. Let me tell you, it will wake you with a start. Rarely happens during the day. Causes pain in different areas of my body at different times. Stabbing pain and or aching pain. Of late this is more constant. Plus often pain on the left side of my head. That is new and started right before they found the nerves controling emotion are being attacked now. If I awake with headpain, it is not going to be a good day. Nuero said it could create depression, but not a kind that can be treated. Having problems with my hands and fingers also. There is damage in my brain in several areas. Because of this the nervous system is going haywire. Hard to explain...Can be fine and sudden sharp pain in a leg or another area. No reason for it like having bumped something etc. Just there and in time goes as fast as it came. Same with the depression, can go from being fine to suicidal in seconds. From minutes to hours later, gone just as fast as it came. Everything irritates, talking, music, touch and movement. At times eaven talking to me can make me want to jump out of my skin.


Two of my Dr's contacted Mayo. My GP and the nuero. Looking at the records they have no answer either. Nuero then contacted Madison University Hospital & Clinic and they are going to see what they can find.


DD came home today and said the some of the same things are happening to a friends wife. Last resort she was sent to Madison. There they found that she had a virus which had attacked the nerves. A simple virus run amuck. She is now on medication and they feel she will get better. I hope they are right, she is only 30 some years old.


Know I didn't explain this well. Difficult to comprehend unless it is  happening you. Even then, tough to explain.


 


friends-4.gif image by Dis_Rain

5360774911227568598063_610w

iVillage Member
Registered: 03-26-2003
Mon, 02-25-2008 - 2:09am

Rain, thank you for a good explanation.
I sure hope that it turns out to be something
that can be taken care of with medication.
I'll be praying for you!

Please keep us posted.....

Hugs,

Cindy


~*~ Aloha to all .... ~*~

iVillage Member
Registered: 03-01-2006
Mon, 02-25-2008 - 7:44am

wow. rain


I thought your explanation was awesome...and I am so sorry you have to suffer not only with the pain and symptoms but also with the uncertainity, the mystery of this illness


I hope they can find something to help..like maybe the meds the 30 yr old got!


will keep you in my thoughts and prayers...I know always you are fighting a hard battle...


makes one realize our daily aches are no biggie!


hugs (but not an irritating one! LOL)

Dutch



Dutch

 

iVillage Member
Registered: 03-19-2003
Mon, 02-25-2008 - 11:51am

Hi Rain


Thanks for letting us know what is going on with you. Your explaination was a good one. I sure hope they will be able to find out what is causing your many problems and help you to get better too my friend.


Sending some prayers and magic dust hoping that those will also help


Love


                          &n
iVillage Member
Registered: 04-30-2003
Mon, 02-25-2008 - 4:57pm

Hey Sweetie,

I am so glad you told us what is going on. I am also so so sorry for what you have to go through. This must be hard for you. I wish I could take the pain and worry from you and throw it in the wind, never to be found again.

I know I havent' been in chat lately, been really tired, tired of winter as I am sure we all are.

Please my sweet friend, let us know what is going on when you can. We all love you and care so much about our wonderful rain.

Love ya sweetie
Gail
xoxoxoxoxoxo

Avatar for sassysooze
iVillage Member
Registered: 03-25-2003
Mon, 02-25-2008 - 11:02pm

Rain,


Thank you so much for taking the time to explain all of this.

Susan siggie
iVillage Member
Registered: 03-25-2003
Tue, 02-26-2008 - 8:32pm
Rain I think your case is totally an Arsenicum case, as we've discussed before, I've clarified it with my supervisors who concur. If you are still interested in an alternative treatment let me know because the longer you delay the poorer the end result will be.
Hugs, Bernie
Hugs, Bernie